Falling Flat on My Face, February and Fragility

February has been a hard month for me.  I ended up going into the office only 7 days between the extreme cold and the weather.  I am lucky to be able to work from home and got tons done.  Also,  I welcomed the rest,  few 4:15 a.m.s.  Excellent.  The flip side is I have a tiny house and even to get up and walk to the bathroom, I don’t get in enough walking.  I work in a building where each floor is a city block.  Depending on what my schedule is I can literally walk miles at work.  Ok so now it’s with a brace and a cane but still.

Went to work on Wednesday and took a cab in the morning.  The bus stop was icy.  I went out to lunch but it was only across the street.  My New Year’s plan which has been derailed by the weather is to go to lunch once a week.  I need to reconnect myself.  I swore when this whole thing started that I wouldn’t let this condition/disease confine me or define me.  And just like my ability to walk, it gradually took over.   I am fighting back.  Wednesday night I felt ok and thought I would do my usual Grand Central, Times Square Penn Station deal.  I left work early so I could take an earlier train.  It’s on a track with an escalator so it’s closer and I walk less.  Well,  I started to fall apart in Times Square.  The train is the 4:12, I was on escalator at 4:11  and the bartender literally held the door for me.  I struggled into a seat.  The ride is an hour and that is enough recovery time for me.  My station is the last stop and almost everyone is gone.  I got up and was in the door when the train pulled in.  I got off carefully (I have to hold on) and thought Ok that’s good.  The next thing I remember I was flat on my face with gushing blood.  All of a sudden, thankfully, there were a lot of people on the platform.  Someone asked, “Are you alright?”  Normally, I am very perky and reassuring.  This time I had to say, I don’t know.  Two many literally lifted me up as if I was a rag doll.  Oh, and another thing.  I am not prone to profanity but after saying I don’t know, I added, “I really f–ked up my face, didn’t I” .  I have not fallen on my face in more than 25 years.  The last time I did I was 24, drunk and dancing in a bar in the Hamptons.  Life does change.  So they raised me and my gushing face up.  A businessman provided tissue and blotted at my face.  I thought I had literally split my lip.  Nope.  I am blessed and lucky.  And my legs felt great.  My face took the brunt of this fall.  Now, the railroad guy comes out of the train.  They want to get me medical attention, file a report, get me a cab, call someone.    No.  My husband doesn’t drive.  I refused.  This station doesn’t have an escalator or elevator so I gimp down two flights of concrete stairs normally.  A man offered to help me down the stairs.  I had a knapsack and a pocketbook.   He showed me a badge and said he was a federal officer so my things were safe.  I didn’t care.  I said anyone is welcome to it.  He was great!   He helped me down the stairs which did have patches of ice.  And he got me into my car.  Husband freaked.  Yes, it looks like I went rounds with someone.  He thinks it reflects badly on him.

Then I went into work the next day.  This is the kind of place I work in, people came in and said nothing!   I have a swollen bloody lip,  a scraped bloody chin and huge bruise under my chin.  Husband thought  it would be a problem for me.  If I fall, will they renew my contract?  Actually,  I felt worse when I got into work.  It hit me, all the might haves.  I have been so lucky and so blessed.  This could have been so much worse.  Thursday night, there was almost no one on the platform.

As I have struggled this week I have been thinking.  I changed the way I eat significantly.  Okay, as I have admitted, I have not gone full force.  I still eat sugar. It’s significantly reduced.  Dairy and eggs radically down.  Never much of a red meat eater but more minimal.

I am getting worse not better.  And I hate when people try and whitewash it.  And I know I am lucky, truly.  I am still walking and I am not going to stop.  This month was rough as I couldn’t literally get out of the house.  That meant much less walking though I did try to do at least 30 minutes on the stepper every night.  I couldn’t get to Zumba or the gym.  In fact, I was planning on going to the gym Wednesday night and breaking the ice so to speak.    So, amp up the food plan and the exercise.  Keep moving forward.

On to fragility.  The cell rings yesterday and I am working.  I see it’s my one of my exes.  It’s a wild, wild life.  I keep in touch with all my exes, all the live ones, except my first husband.  I do have two dead ones.  Stories for another day but both died when I was young, one of AIDS, one of cancer.  And yes, for years I had the spectre of AIDS hanging over me.  The one after them said I am never breaking up with you.  Men who leave you die.  Well, I left him and he’s still alive.  After that, I was the one that did the leaving.  I lived with the ex whose number showed for several years.  It was not healthy.  He is significantly older than me.  We would have conversations and he would mention an event and ask if I remembered.  My response was usually “I was three!” or “Uh, I wasn’t born yet.”  We maintain cordial relations but he still can be controlling and domineering.  I let it go to voice, picked up the message and it was his daughter saying we think we have the right person, you lived with my Dad, he’s in cardiac ICU.  I called back immediately and reached his son.  He told me that ex is in medically induced coma, had massive heart attack and they are reaching out to the people that were important in his life so they are not surprised. I am devastated.  He’s tough and ornery so I am not counting him out .  It’s ironic.  He hit me once in the face and the next time, because there always is a next time, I punched him in the chest before he could touch me and knocked him out.  There never was a next time after that.  He said “You could really have hurt me”  I was “Exactly”.  I left. We made our peace.

This is all, the fall, the deterioration and the ex, making me feel fragile.  I am tougher than this.  It literally hurts to smile right now but I am trying.  I can and will rise again.

Fatigue, Fantasies and Husbands

I fantasize about sleep.   I count days and hours until I can sleep.  I roll over in bed and think either this time tomorrow I’ll be sleeping or this time tomorrow I’ll be awake.    I have to get up for work some time between say 4:10 a.m. and 4:30 a.m. four mornings a week.  One of the effects of the condition I have is supposed to be fatigue.  However,   my doctors say with the hours I keep, who can tell?  I see their heads nod and eye droop when I describe my hours and my schedule.  They say anyone would be fatigued given that schedule.  And I am getting older.  It’s just a fact.  I have read that as we age, we need less sleep.  NOT!  Ok, so maybe we don’t need it to grow, that doesn’t mean our bodies and minds don’t want it.

I keep memories of a good sleep like notes on a good bottle of wine.  I still remember the sweet deepness of sleep the night of Hurricane Sandy.  I had one almost as good the night of a blizzard last month.

I guard my sleep ferociously.

I have been to the office only three times this month.  Yes, a few hours more sleep but much less walking.  Here’s my vicious cycle, the less I walk, the less I am able to walk.   We have been trying to compensate by having me do the stepper every night but still I have been coming in at most around 5,000 steps.  A normal day for me at work is over 7,000 and I used to get to 10,000 or more.    I did go into work this past Thursday and could barely walk.  It was bad.  My husband doesn’t understand that I just can’t stop when I am working remotely and do 15 minutes on the stepper. Plus, it’s not the same as walking.  I have tried to get in 30 active minutes a day.

Yesterday, we set up the treadmill upstairs.  My plan is to go on it in the morning when I drink my coffee.  We’ll see.    Yesterday I struggled to do 5 minutes on it.  My goal for today is 6 minutes.

Confession – I have been lax with my PT exercises.  I was really on it for awhile and then it just started fading away.  I was doing abs every night and then I fell.  It hurt too much.  I am hoping to start again this evening.

Cut to last night.  3:50 a.m.  Husband gets up.  “I have been thinking and I have decided”.  This is when I call him Jack because he sounds just like his father.  ” You know I dream things through, you know how I used to help you with your exercises?  Well, I really can’t now because of the operation”.  Then he went through all the exercises I am supposed to do and what he could or could not do.  Told me I couldn’t do 10,000 steps today as I had only done 3500 yesterday but I would do 6000 today.  I would do the PT twice on weekends but not during the week as I certainly can’t get up before 4.  And maybe, he will create a spreadsheet to track everything.  Now I know he’s talking in his sleep because spreadsheet is not a word he uses.  He has the remarkable ability to have complete literate conversations when he is completely asleep.   And I am looking at the clock thinking “this time tomorrow I will have 20 minutes more to sleep”.  I can’t hit him because of the operation.  I drifted off.  This morning he has a vague recollection of the whole thing but says it goes to show I am always thinking about you.