Well, I went back to the doctor for a check up after Ampyra. I wore a dress as I had had an important meeting at work. So peach sheath with eyelet lace top, white shawl, pearls, the spectral leg and palomino tie shoes. She told me how good I looked and loved the shoes. I don’t mind them. She also assured me that I looked fine. I hate feeling odd and spastic. In fact, she said I looked great.
My walking is improved. We knew that already. She was really happy. I have had no adverse reaction to the drug. I just read someone else’s blog about drug costs. I was originally not covered for Ampyra and my insurance blithely told me $1300 – $1500 a month. I had to go on Affordable care. I am covered! But here is what’s odd. I make more money than I ever have but drug company now is subsidizing!
Now, I have insurance so we can discuss Copaxone. She told me which I knew it would be off label, shots ( I don’t do needles) and it’s only been shown to be effective in men. Our decision? No.
Next we discussed my scans. Again, due to Affordable care I can afford them. I was dreading this as my hands are going. Right now I am not typing this at my regular, typical speed. Forget my already bad handwriting. There are times I can’t use my fork properly. This annoys me as growing up I was told “don’t shovel”. My husband has to put up my hair. And my left foot feels like a club. The MRI says NOTHING has changed. Now this makes no sense. I used to walk into that office with heels. I didn’t wear spectral leg all the time nor a cane!
Our feeling is that’s why we call it MC for my condition. We don’t think it’s the other. I believe this first ran amok in my system when I had no job or dental insurance and a hole in my mouth and subsequent infection. I eventually had work done. And recently, the bridge ( same tooth) was really loose. I was bleeding through my teeth there. I had a cavity filled. The dentist was going to remove the bridge and remains of the tooth. His words when he went in, “It’s very mushy” Lots and lots of decay which means poison in my body! I have to go to the oral surgeon for this and my wisdom tooth removal. I am supposed to do it at the same time. More drugs in my future. I have a meeting with the head of my company July 31 and don’t want to take chances so will schedule right after. We think this will help me improve. I am also going to be more aggressive in eating clean foods and the exercise. Improvement will and can happen.