Well, I received the call at 8 this morning that I will be getting a shipment of Ampyra on Tuesday. Two months free, too. What a difference a different insurance makes. Here’s the thing my doctor isn’t covered but what she prescribes is. So now, she costs hundreds. Ah, well. On my old insurance, the drugs would have been 13 – 1500 a month, not a year, a month. Now it should be 60 a month.
I am scared. I actually fought it for ages. The doctor said originally it would help me walk faster. And I didn’t need that. In fact, first time insurance rejected me because I didn’t walk badly enough. Then she said I could walk longer. I was sold. The stagger through three train stations was/is getting to me. Now, stagger would be welcome. It’s been cabs the last two weeks which is way too expensive. And I hear myself turning into a cantankerous, querulous old woman.
I had hoped that the food would have kicked in. I need to be fair, I have been cheating more and more so I do need to get seriously back on track. I take baclofen every day and the dose has increased. It does help but it seems that I need more and more and I don’t like that. I don’t want to become dependent on the drug and I know I will. My husband says to think of it like the blood pressure pills he needs to take.
It’s only effective 60% of the time. I don’t consider myself lucky that way so we’ll see. I may be agitating over nothing.
And then as some of my favorite bloggers have mentioned, what about side effects and reactions? Really scared. My dad had high blood pressure always. He finally was convinced to take meds. He had a reaction and he started curling up, literally. We teased him for years. I am his child, after all.
I know I need to do this. I need to retain some functionality, no bilateral support in my future. I need to continue to come out swinging.