Resiliency

I have been without work for 4 months today.

On the positive side, I have been able to have some much needed rest.  I haven’t had to wake up at 4 a.m. ish since then.   My body clock has adjusted or righted itself to a 6:30 a.m. – 7 a.m. rise.  I go to bed around 10.  Finally, after years like a normal person.    I go to the gym.  I eat healthy food – read I have not gained weight at home.

On the negative side, I walk less.  I try but most days can’t get in near the amount of walking I did when I worked.  I would have thought I would have been improving significantly.  I am stressed but in a different way.  I need and want to work.

My walking has impacted my job search.  I know the first interview I went on was ageism and the “disability”.  They couldn’t get me out of there fast enough.  Other ones have been more subtle.  I had two companies that I went through several phone interviews.  I had to get on a shuttle bus for one.  When I was well I couldn’t get in those.  Ask anyone who ever had to take an airport shuttle with me.  The second one was the same day as the shuttle one.  I wobbled.  I need to use the cane.  It is stylish.  I try to wear non cloddy oxfords.  I wear loose pants over the spectral leg.  I disclaim that when I worked I took two subways everyday!  I work into the conversation how many steps I walk in a day – over 8,000.  This is seriously more than most “well” people do.

I have explored some opportunities on Long Island where I live.  The company recruiters have been upfront with me.  I am not cheap.  However, I have lots of experience and am excellent at what I do.  I had several conversations with a major national company out here that would have met my salary requirements.  I didn’t have to walk as my experience in and of itself was kind of threatening.  I was OK .  I made it through phone interviews to an in person assessment.  One person saw me with the cane.  And I walked well!  We had a really great conversation.  I had the experience and the approach they wanted.  This company told me when they made the initial call that they raised the salary because they knew with my experience, it was expected.  I received the standard thanks but no thanks e-mail today. I am finding it really hard to take.  My husband says it wasn’t my walking  but the expense.  I don’t know.  I usually believe everything happens for a reason.  Numerous times in the past I have not been offered jobs that I wanted and maybe should have had and it all worked out.  Sometimes, I didn’t see it at the time but later I did, including two jobs at the World Trade Center where in all  likelihood and seriousness, I would have died.

Finding work has always been hard for me.  This time has been easier for me in a certain way.  I almost always have something in the pipeline.  Years ago,  I was almost always one of two and almost always came in 2nd.  I don’t know where I am now.  Last time I had a termination like this it took me almost ten years to get back to where I was.   I don’t have the time, money or energy for that.

Normally,  I take these setbacks in stride. I was relatively calm four months ago.  Today I wept.  I almost never cry about anything.  My husband  was lost.  I am the strong one.  I don’t get blue.  I snap back.  It’s freaking hard.

It looks like I need to head back into NY.  Like Willie Sutton said, “that’s where the money is.”  I was liking sleeping like a normal person.

I am trying to find that resilience.  I know I am a resilient personality.  It’s hard.  It takes energy.  It takes faith..  If I don’t use the cane, I’ll lurch more.  I don’t know how else to address this.  My mind is fine. I feel “normal”  until I stand up.  I forget my physical limitations.  For the past month or so, in my dreams I find myself walking.  I wake and am crushed.

Digging down to get out.

Why Did the Chicken Cross the Road?

Why did the chicken cross the road?

Good question.

Right after Thanksgiving, my husband called out to me to come look out the front window.  “There’s something odd out here.  I think it’s a turkey.”

“Really?”  asks I.  This is a man who has had issues in the past. So I gimp out to the front.  I see nothing.  This is not unusual.  I was the child who always finally agreed that she finally saw the constellation or the bride coming out the church door rather than enduring “See?  See?”   I did see JFK on the Belt Parkway though. I am not quick.

“no, no, don’t you see that black thing.”

And there against the fence across the street was a black chicken.

And then, the chicken crossed the road!  Please understand, we live in a suburban area.  The bane of our existence is a used car lot next door to us that houses a massage parlor from time to time.  Across the street on the corner is a former gambling hall.  I was reading news headlines one day at work that the newly discovered bomb plot by either the Gambinos or the Gallos was directed at that building.  The Feds closed that one down.  And wait for it; we had prostitution there, too!  The house that the chicken bolted from we refer to as Sandford and Son.  A  seriously collects junk when he is not “away”.  Also, think from time to time, “junk” is sold from there.  Uh, cars pulling up with engines running and people running in and out?  And the SWAT team was literally there about three years ago.  Police frequent the house (more on that later).  Sometimes, on a weekend we have copter hovering over and doing a sweep.  No, it wasn’t like this when we moved in and who would want to buy this?

Back to the chicken who has crossed the road and is now in our yard.  Now besides the organized and unorganized crime, we also have woods behind us.  So, we have  a fox, opossums, feral cats,  huge raccoons and dogs.  T says “Do you think it belongs across the road?”  It crosses the road and is pecking at the fence.   “yes, why not?”

“Do you think I should go over and tell A?”

Me:  “Yes, I do not want to wake to chicken guts on the front step.”  We feed the ferals and as a consequence birds, raccoons, Fox and possums.  “We do not need to provide gourmet treats for the ‘hood.”

T trundles over and is gone for awhile.

A admits chicken ownership and is stunned that chicken crossed the road.  He has more than one.  It’s a menagerie over there.  In addition to the pitbull that pinned me in the car one day, there is a cat that we feed.  We call him AC for A’s cat.  We discovered this one afternoon when T & A were talking and AC strolled up and ate the food we leave for him.  A says “Oh, my cat never eats dry food at home!”  Uh, why should he, when he eats with us?  There is a macaw and a little dog, too.

So chicken custody determined, the guys begin to chat.  A discloses he’s on probation for DV.  Coincidence!  T just finished.  I did say more on the police later.  If you have been reading me for awhile you may believe that T is a devoted and caring spouse.  He is when he is not drinking.  He’s an alcoholic.  He is not allowed to drink in front of me.  Easier said than done, no?  So, he has been arrested here about 16 times, no joke.  This means police have been here at least 20!  It’s a small block, hidden away.  No one really knows how to get here except for the precinct.  In fact, one night they were over and asked, “Weren’t we here earlier today?”  No, they were across the street.  Fair disclaimer, T ended up in DV because they couldn’t get him on alcohol any other way.  An ADA even told me once, if we could get him in a car.  He has no license so that’s a non-starter.  The DV is the alcoholism.  It distorts people.  The cops who constantly arrested him realized that when sober, he is wonderful.  Over the years, they have liked the work he has done on the house.  “Wow, you redid the floor!”  We have an almost cordial relationship with them.  And we have been to court so often that we are personally greeted, and people look to me for advice.  Luckily, that is all over.

T was on probation for three years and concluded it successfully.  So, he is in a position to advise A and was giving him helpful hints and tips.  We believe it will be the same PO that T had. The first time she came over the house was just after dinner with the kids.  In fact, when there was a knock on the door, we thought one of them had forgotten something.  I had made stuffed pork chops and used rice wine in the stuffing and had sprinkled it because it was dry.  They breathed him and said he was positive.  We later learned that the amount would not have been recognized if he had been driving.  We didn’t know and were terrorized.  They told me that me or the kids would not know if he had been drinking.  So, not right.  We always know.  We have lived with it. And as I said at the time did they really think that having had him arrested so many times I would tolerate it and not call? I was told I could no longer use cooking wine and they made me dump my almost full bottle out.  Then they trashed my house searching for drugs and alcohol.  When they went through my mother’s antique petit-point purse, I lost it.    We have a tortoise shell cat that we took in from outside.  Of course, the cats are freaking out with these strange, hostile people in the house.  Miss Mollie runs out to hide someplace else.  Officer N shouts, “Is that a raccoon?”

Their home visits were fine after that except for the time they came after 10 p.m. when I was getting up at 4 a.m.  They have come over when we have been drinking coffee on a Saturday afternoon or making Easter chocolates!  And we  had no luck coaching Miss Mollie on how to be a raccoon.

Let’s be clear.   I never considered myself a victim, ever.  I called precinct so that I would not be.  Everyone wanted to fit me into a mold just like they do with this disease/condition.  When I work,  I make very good money so I am not dependent on a man.  The house is mine so I can’t be thrown out of it.  I was always being offered help to get a job and find housing.  Where I did feel like a victim was in the hands of probation.  Even though T doesn’t drive or work, he had to be at places that are very difficult to get to without a car.  There were also huge fees that in essence I was hostage to pay.  I was always told I didn’t have to and he would be jailed.  Does this make sense?  I was told I could give him the cash (they only accept cash) and transportation cash.  Uh, especially in the beginning, money was a trigger!  The situation is designed for people to fail and generate revenue for the county.  We had to discontinue our marriage counseling as we were told it was not allowed.  The program he was in was ridiculous and meaningless, no curriculum.  He was told if it was up to them he would not be allowed to live with me.  The people in his “class” terrified both of us.  There was the guy who had thrown his girlfriend out of the car when it was moving and one who said when accused of choking his girlfriend ” But I stopped when she turned blue!”  T successfully concluded the program.

I refuse to be considered a victim with my condition either. I will not conform to people’s expectations.  The child is father of the man.  My mother used to tell me that I conformed to non-conformity.  It’s turned out to be a good thing.  I don’t buy into the whole incurable thing.  As I have said before, I am not going to tout the advantages and delights of motorized scooters.  I hate the spectral leg.  I hate orthopedic looking shoes.  I use funky walking sticks.  And no, I am not going to apply for disability.  I do not walk well.  I am not disabled.  I am able just not as able in certain areas.  By the way when I am working I literally walk or stumble more than the average American! Yes, 8 – 12,000 steps a day.

So, husband is  giving A advice.  This is going to be interesting as I believe she is not as strong as I am and there is a language barrier as well.  And we believe  it will be the same P.O.s that used to come to us.  We would love to be a fly on the wall as they experience the menagerie, chickens included.

Why did the chicken cross the road?  Goes to show that we are more connected than we think.  And the chicken keeps on crossing the road.

 

Valentines – Get Out of the Kitchen

Well, things have been a bit tough lately with my not working in months.  We have been very frugal and watching every cent.  Last week I went on an encouraging interview.  It was one of those 2 on one deals as well. So, maybe a tad anxiety inducing.  As a treat ( I have a friend who always expresses amusement that I know how to soothe myself) we stopped in at the new Stew Leonard’s on the way home. It’s  a dairy, specialty supermarket.  The first one on Long Island opened not far from us and on the way home.  Feeling optimistic, we splurged on some ribeye steaks and baked clams.

Since Valentine’s was the coldest on record  if not a century, outdoor grilling was a non-starter.  I looked on Epicurious and found a stovetop recipe – 2 minutes on high heat on each side then a wine and garlic sauce.  I have been on the weak side the last few days and have been unable to hold things and off balance. Not sure if it’s stress or weather.  Refuse to believe in deterioration.   T also fancies himself quite the chef.  He said he would do the meat and I could do the sauce. Recipe said 1 tablespoon of oil heated till it shimmered.  “ how do I tell if this is shimmering?”  Mr. Excess had put in what looked like a quarter cup of oil and sprayed the skillet as well.  I said saute, not deep fry.  He dumped some out.  First side seared nicely.  Second side started to smoke and set off our fire alarm.  Cats dived for cover.  We disconnected alarm.  Second steak, first side ,house is getting really smoky.  It is 12 F outside.  T opens kitchen window and front door. T is asthmatic and starts to gasp.  Goes into bedroom and shuts door to try and block smoke.  He comes back out with shirt over his mouth and nose to remove steak.  I start sauce.  Now, part of my condition which has also been getting worse is I get really cold and my hand turns purple and my feet get so cold they burn.  We had worked really hard Valentines making sure I stayed at the right temperature.  At one point I even had on fingerless gloves.  So, needless to say as I am doing sauce I start to shiver and shake.  I make him close the window and door.  Steak was  excellent; atmosphere was smoky but not smokin’ hot.

Badlands

I have discovered Amazon Prime Music and I am in love and enthralled.  The music of my life at my fingertips, for free.  Well, for the annual membership which I use for tons of other things so this is just bonus.

I think I may be like many people in my age range.  I have albums of my music or as my little nieces say “What big CDs you have:.  I have downloaded some of it on my ipod.  But….  There are all those albums and memories.  I am in Amazon download frenzy.

This weekend  I found Badlands.  Serendipity.  I get through my life with music.  When I lose the music I know I am in bad shape.  After a long bad time years ago, I knew I was going to be alright when I heard Springsteen on the radio and felt joy again.

But Badlands is more .  Years ago I lost the job that I loved.  Why do we say lost?  I didn’t lose it, they let me go.  Eight and a half years of mostly love.  I believe the roots of my present condition hark back to that time.  I used to work insane hours happily.  I didn’t understand why people couldn’t wait till Friday or were upset at Mondays.  I travelled  all over the world for that company.  However, there was one trip.  I was really sick before I left.  I was going to spend two weeks in Japan and Taiwan and fly back to California to work a trade show.  Then I would stay a few days in Los Angeles with my boyfriend’s best friend.  Men who did that trip used to spend some days in Hawaii and their wives would fly out to meet them.  I was unmarried and wanted to go to the beach in Thailand (bucket list though the term wasn’t used then) .  Instead, I had to fly back to California to work.  One of the guys gave me advice on how to fly so sick.  “Blow Afrin constantly up your nose before landing.”  Well it worked.  I made it through landing.  Who knew half an hour later that the pain would be excruciating .  I was really sick.  I was the company’s “little girl”.  The men I had to meet for business were terrified that George (the president) would be furious if anything happened to me.  I was constantly plied with soup. I slurped my way through Japan and Taiwan.    There is a reason for everything .  I was in the same hotel in Tokyo as Mike Tyson.  His posse insisted that I “party with Mike.”  I couldn’t even croak.  Just nodded “no” numerous times and kept on going.  My brush with “destiny”. When stories came out about those girls later,  I totally believed.   I left Taiwan at 11 a.m. in the morning, landed in Los Angeles at 11 a.m. the same morning (international date line) and worked till 11 p.m. that night.  I was so sick I couldn’t think of staying in LA after the show.  Back in NY, I collapsed  in JC Penney’s.  I was diagnosed with pharyngitis.  I truly believe that disregard for my health is a source of my ultimate conditions.  And ironically enough on my return I found as scared as everyone was of telling George being furious if anything  happened to me they were also terrified of telling him that I was too sick to undertake that trip.  So, after all that dedication, passion and bad health, I was cut loose in the world.  I was gutted.  I lost my livelihood and most of my friends.  Well, I guess they weren’t my friends.  Actually,  I do still have some from those days and some have died.  In fact,  I had a card this week from one of them.  But with no money and no job ,  a disastrous marriage, I felt cut off from everyone including myself.  I would wake in the morning feeling as if there was a huge pillow in my face.  I left my then husband ( I love that phrase “my then husband”) and moved back with my parents.  They couldn’t acknowledge depression.  My mother was a pull yourself together type. She said to me at the time I had to learn how to do it myself because she wasn’t always going to be around to do so.

I was back in my childhood bedroom.  Me and my record player.  I started to play Darkness on the Edge of Town and Nebraska obsessively.  Badlands helped me through.  “Talk about a dream, try to make it real.  Spend your life waiting for a moment that just doesn’t come.    I believe  in the faith that can save me .  Raise me above these badlands. For the one who had the notion, notion deep inside, that it ain’t  no sin to be glad you are  alive. I’m gonna find one face that ain’t looking through me.  I want to spit in the face of these badlands.”  And that’s what I did.  I made it through the badlands.

 

And here I am again years later.  Another job “lost”.  Financially crunchy.  Up against those Badlands again.  It all came rushing back again.  This time I do not have my mother to put me back again.  I am starting to crash.  One thing I know I can’t and won’t go back to that freefall again.  Well, I still feel the joy of the music again.  And I still retain my resiliency.  Resiliency feels like a curse sometimes.  I used to tell my mother I felt like a Joe Palooka punching bag.  Every time you hit me I spring back.  My spring is getting kind of rusty.  This time there’s the extra wrinkles:  no parents, my condition, uh, actual wrinkles, a mortgage.  We wonder when I go for a job with my outfit coordinated cane/walking stick what the impact is on the hiring decision.  I had an interview where I had to get in and out of a van.  I would have and have had the same difficulties in the past with heels.  I am not the most graceful or coordinated person as numerous airport shuttle drivers can attest.

I see my resources dwindling as I hold onto faith.  And yeah, I’m blasting Badlands again

Lotteries and Windfalls

As with many people in the US a few weeks ago, we caught Lotto fever.  Over 1 billion is worth a flutter.  Overall, I am opposed to the lottery.  Originally in New York it was supposed to fund schools.  Really?  And look at the schools in Detroit.  But enough of that.

We bought a few dollars worth of tickets and began to speculate.  What would we do?  Husband announces that first thing we get the absolutely best doctor in the world for what we call MC (my condition).  Ok, you may say I am in denial but it works for me.  Everyone is different.  And after that we would buy a nice house.  We would pay off the one we currently live in.  I must paraphrase Hyacinth Bucket a.k.a Bouquet – the house that is now next to the used car lot with the massage parlor.  The parlor or message store as the police referred to it in a report I made after I had another flat in my driveway is temporarily gone.  Funny enough, as soon as we returned from police, the big sign in the front was gone.  Do I need to say more?

Then after a house for us, one for each of the boys and husband’s sister.  And then?  Well, lots to real charity.  In fact, the other night there was something on the news about local people being displaced and renovations  would have run a few million dollars.   Husband said, “We could have done that in a heartbeat if we had won.”  Well, we didn’t.

Recently, I have undergone significant financial reversals.  No, not the stock markets.  More along the line of no income.  It appears that hopefully after all the belt tightening, this is about to change.  As I anticipate this, another list to make.  Late last summer, a man who saw me commuting, pulled up his pants (nothing lewd here) and showed me a device on his leg.  He thought we had the same condition.  It’s a Walkaid and there’s also another product called Bioness.  They cost a few thousand.  We didn’t have any money when we spoke to the doctor about it and she said it might give me the same results as the Ampyra or it might be better.  It tops my new wish list.  I had to cut back on my traditional donations.  I was an officer at a bank years ago.  One of the first things I did when I received it was write checks to my favorite charities,  My co-worker thought I was odd but it used to give me a kick, almost as good as sex, more like a deep kiss.  Donations to AAUW’s Legal Advocacy fund and the County domestic violence unit.  My two favorites.

So what else have I been thinking about and missing?  Well, as I have said before clothing is my life.  Therefore, I shop.  I love the air in stores, the undercurrent, the lust.  It energizes me.  I remember being in Paris once hungry and tired but in track of a shop I had heard about.  I found it and revived like a flower in water.  Due to my own personal economic downturn I haven’t been able to do it for ages.  I am surprised.  This situation has made me less materialistic.  Clothes and cosmetics aren’t really part of this list. When I received word that things were going to be ok, I admit to flipping through a Smithsonian sales catalog and seeing some Christmas necklaces that would be wonderful for my elves next year.

So what else is on the list?  I want a car.  I wanted one for my milestone birthday.  And not just any car, a “luxury” car.  I am known for saying carwise I am OK with a box, wheels and a radio.  I certainly do not see a car as a reflection of who I am.  My ex-husband and my brother always derided me for that.  I wanna Buick, like the commercial.  It’s cute.  My brother-in-law who is amazing with dealers and dollars couldn’t make it work for me.  The car represents getting something for me and for once not settling.  That’s what it’s about.

This is what I have learned during this setback, downturn, whatever you want to call it.  I no longer want to settle. Not in terms of what I do for a living, not in terms of a car, not in terms of my health.  Oh, right after car on my list I have sliders for Zumba for my sneakers and a personal trainer.

It’s been a huge lesson and one way or another, in my mind, I have won my lottery.

January 2016 Check In and Prior Year

Start of a New Year so it’s time to not only look back at the previous month but also state of being (so much more than health) for the last year.

How did I feel this past Year?

It was definitely a mixed year.  I had some highs and lows.  Getting the Ampyra and being able to walk more was great.  I also was able to get nice “things”.  It was an acknowledgement that I was good enough.  I made my milestone.  I spent it with one of my best friends.  I lost 20 pounds because I ate right, not diet.

I lost my job and that’s what I did, it’s lost. So, maybe that’s a low.  We’ll see

How did I feel this past Month?

It’s the holidays – a bit frazzled.  I am surprised despite being home I didn’t get a lot done for the holidays. It’s like losing in a way.  Overall, a bit calmer.  Still trying to sort out.

What did you do for yourself this year?

Well, I did more exercise and was more mindful of my health.  The biggest thing is that I stood up on the job issue and have not taken it lying down.  I also validated myself  by believing I was good enough.

What did you do for yourself this month?

Well, the Elves Workshop was a blast.  I have more fun than they do.    Spent time with the kids which was great.  Applied for jobs like crazy.  Still trying to reconnect with me.  Restarted my gratitude journal and my journal.  The gym.

What did I eat this year and how did it make me feel

The beginning of the year was better than the end.  I slowly drifted off plan.  It clearly reflects in my health.

What did I eat this month  and how did it make me feel

Uh,  holidays?  Totally lost it.  Last year I didn’t touch the cookies.  This year I ate them all!  Still tried to mitigate when possible.

Did I exercise?  What did I do?  How did it feel

I am going to answer for both the month and the year.  I increased it this year.  Partly due to the Ampyra, and part due to what I wanted and needed.  After the job ended, I started the gym more.   However, it’s not like in times past.  I realize it’s because I can’t take classes so miss the social bits.

For whom or what are you grateful?  What matters most in life?

Again, I feel blessed, especially at this time of year.  I can still walk.  I have friends I love and who love me.  Life is still full of possibilities.  I still feel joy.  Friends, health and love are what matter.

Do I have a higher purpose or driving force in my life?   Make a mission statement

Still working on that mission statement.  I am thinking about joy.  Someone commented recently that I have always been smiling since I was a child.  And she should know.  So sharing that joy.    And whilst I don’t want to be a poster child, I am partly out about the MS.  Okay, I still don’t accept it.  However, if coming out prevents people being treated the way I have been jobwise, then so be it.  I guess at the end of the day I want my life to have mattered and changed someone else’s positively

Conventional medicine  Just the Ampyra and Baclufan.  Waiting for coverage for the biotin

Symptoms – Well the stress hasn’t helped.  I am a bit weaker.  My balance is the pits.  My hands are going but I am fighting.

What symptoms are most troublesome  – Walking as always. A bit wobbly too.

Do I blame myself for things – Same as always. Of course! Yes, I am still blaming myself for not being aggressive against this. However, getting back to me, slowly, slowly but surely!

How is stress level?

Moderate.  There are days it peaks for sure.  When I take money out of savings to live and when I have to charge things.  But not commuting is so huge.  This still applies.  Feeling not working but am optimistic.  Stress is down a bit and manageable.

What can I do tomorrow to make it better than today?

So aside from my Christmas pudding, a serious return to the right eating, sticking with the gym, gratitude and attitude.

Make 2016 count!

Christmas Pudding and the Ghosts of Past, Present and Future

I made Christmas pudding aka Black Cake aka fruitcake aka plum pudding this week.  It’s always been part of my life.  My grandmother made it.  My mother made it.  My aunts make it.    I have always loved it.    I am not a quiet personality.  One of my supervisors told me some years ago that had I been growing up now I would have been diagnosed as ADHD.  A facile explanation for sure.  But this is an old family story.  My Grandma had mailed pudding to my mother.  My mother was talking to my Bubba and noticed silence.  I was two.  Upon investigation she found I had gotten into the pudding.  Bubba told her well at least I would get drunk and pass out.  Uh, that’s not how I get drunk to this day.  I get hyper and very active.  Child is father of the man.

The pudding is one thing that I cannot give up.  It’s an integral part of my Christmas.

My mother made it all by herself when my brother was two and I was around five.  She declared that she wanted to jump out the 6th floor window and would never make it by herself again.  It’s an intense process and truly needs a family.

I was reflecting on how things have changed.  Some parts of the pudding are easier now.  When my mother was a child she remembered the servants tending it over a fire in the yard.  As this was in the tropics, it must have been quite the undertaking.

Traditionally, we made pudding the Saturday or Sunday just before Christmas in the last few decades.  Before that when I was little, it was done earlier as it had to be posted to Jamaica to arrive before Christmas.  That too, was a process. The correct tin and box had to be found, the brown paper wrapping and string, the customs form, the trip to the post.  Of course, if someone was coming or going a chance could be taken to smuggle it in luggage.  The opportunity did not frequently represent itself.  And of course, one received puddings too.  I now send pudding to my father-in-law who states it is the closest thing to Irish plum pudding. Of course, we are all colonials.    We send it after Christmas so he can enjoy it on his own, without sharing. I do share it with those who know it.

This year I made it the Tuesday before Christmas.  I am not working so not bound by the weekend.  I have only done it once or twice on Christmas Eve.  Once recently, due to work.  It made me feel unsettled. The  last Christmas my grandmother was alive, I made one by hand Christmas Eve at my aunt Hyacinth’s.  We had landed from New York that day.  Hyacinth hadn’t done it.  In fact, it really wasn’t a true pudding but more of a raisin cake/pudding.  It was made with raisins that had been soaked with I am supposing brandy.  Hyacinth was big on having a dram of brandy after dinner with a little cigarillo. It was flavored with rosewater.  I did by hand and mixed and cooked till literally around midnight.  I woke Christmas morning with blistered hands. I don’t think we even tried to smuggle our own in.  My mother was aghast that Customs made us unwrap all our presents.  By the way, it was agreed, my pudding, such as it was, was excellent.

Pudding is a huge process and starts months before.  Fruits need to be bought and in my family soaked in port, sometimes with a little rum.  We used to have a brown Mott’s apple juice bottle for the purpose which we kept in the garage.  My husband recycled it by accident a few years back.  My mother would set a box of raisins on a cookie sheet covered with cheesecloth and set it out on the backyard table in the sun to “plump”.  And then the bit I hated and have dispensed with, we had to cut the raisins.  This was done one by one and was a sticky mess.  This practice was dated to when raisins weren’t necessarily seedless.  Then prunes had to be stewed and pitted.  Another mess.  I buy them pitted most years and sometimes I stew, others not.  In the old days the pits were dried than cracked and the kernels also went into the bottle also.  I did that once by myself and had one of those jumping out the window moments. Then mixed citron.   We have had problems finding this in our regular market the last few years.  We were getting desperate.  Bought it this year for $10.00 and my mother and grandma would be twirling in their graves at that thought.

In the past, in the afternoon the day before, we would sit around the table and crack a pound of walnuts.  These go in last as my grandmother said any earlier made the pudding “mecky”.  I buy them shelled.  I am deeply grateful that I can afford to do so.

The night before we “rubbed” a pound of dark brown sugar and a pound of butter together. The purchase of the butter had to be  I did this by hand at Hyacinth’s.  We used to use a hand mixer.    The mixture has to be completely incorporated and change to a pale beige color.  How we didn’t burn the mixer out, I do not know.  My father, who never, ever tasted it would always fret that it would spoil.  They argued about it every year.  I have a Kitchen Aid.  It takes minutes and it’s done in minutes.

The morning of is very busy.  The tins must be taken out and set up.  When I was growing up, we used a pudding basin that must be easily over 100 years ago.  This was supplemented by three tins dating back to WWII.  These were made at that time not bought.  They had very sharp edges and as the years went by began to fall apart.  About ten years ago I mentioned the tins were shot and a West Indian woman told me that there was a kitchen supply place by the office where I could get them.  I did!  They were inexpensive and easy.  Another change.   The tins need to be greased and lined.  We used to do it with Crisco and the saved papers from the butter, and waxed paper.  I use cooking spray and parchment paper.  Cutting the wax paper was always an ordeal.  My grandmother made clothes without a pattern and cut freehand.  My mother cut perfect circles.  And then there was me.  I can’t cut a straight line with a paper cutter.  I lost that job.

Then pots of water must be put to simmer on the stove.  They have to be the right size to accommodate the puddings.  The kettle needs to be full and simmering too to be ready to replace water in the pots as needed.  One of the favored pots is my baby bottle sterilizer.

Next my Gran’s big bowl needs to be taken out.  When Grandma and Ma were doing it that was where the butter and sugar had been rubbed.  It’s a massive antique bowl.  I see smaller ones in antique shops and they are quite pricey.  We used to have a nested set but as this one is only used once or twice a year, it survives.

Assembling the rest of the ingredients:  It requires a dozen eggs.  They should be separated and the whites and yolks beaten.  My mother didn’t separate.  My Gran used to and whip the whites by hand.  In my teens, they compromised and separated but didn’t beat.  Ah, mixers.  I separate and whip the whites and beat the eggs.  This is when my husband starts to implode as he contemplates masses of dishes.  Next is the scale.  Again, a once a year item.  My mother got it with Plaid stamps.  Our recipe require 3/4 pound bread crumbs and 1/4 pound flour. This then gets sieved a cup at a time alternating with the fruits at the end.  First off, I stopped sieving the flour.  It’s a different time.  The flour is fine enough. Then we used to definitely sieve the bread crumbs.  This requires two people, one mixing, one sieving.  I used to sieve then I graduated to mixing.  Now, I do it on my own.  No sieving!

The butter and eggs get transferred to big bowl and now we start mixing by hand.  We add rosewater, vanilla and the secret ingredient – black currant jam.  This jam is so hard to find some years.  The spoon needs to stand by itself when the mixture is right.  This has been challenging in the best of times.  Now, I am weaker and older.  I need help.  My husband stepped up to the plate.  At this point, I feel incredibly sad.  My frailty bothers me.  I remember the last time I did it with my mother, too.  She had dementia but I didn’t realize.  I couldn’t imagine how she had forgotten how to do it.  That night was one of the last times my brother and I had cordial relations.  He stopped by the house, said I had to get out of the house and took me out. I got blissfully, blessedly drunk.  Jumping out of windows was not an option.

Next step the mixture gets divided into the tins and the tops get sprinkled with flour to seal them.  The tins are then shut and in the old days we made a flour paste to put around the edges.  It was my first job and I hated it.  Now I have proper tins that lock.  The next bit was my father’s and he bitched every year.  The old tins had to be tied with string without upsetting the contents so that the tins could be raised and lowered.  Much screaming and gnashing of teeth.  I have proper tins and my husband is amazing at knots so all that is needed is a loop at the top.

Onto the stove to steam for four hours.  The house begins to smell insanely of liquor and Christmas spice.  This drives my husband crazy as he is allergic to the nuts and can’t have any.  You have to keep watch over the pots to make sure there’s enough water.

It’s always a long day.  This year I was destroyed.  I literally hurt in all ways.  I hate not being strong enough.  I honor the past.  Some years it’s easier than others.  This year I miss my mother and my grandmother.  I know Grandma would not let me do it my way, the new overtaking the old.  They were precise women with a sense of what was the right way and wrong way to do things.

The puddings are served with a brandy hard sauce.  Not in my house, can’t take the chance on the alcohol and husband.  More adjustments.

At the end of the day, this is Christmas – family, memories, tradition.

Merry Christmas!

December Warrior Check In

Oh my.  I am not working a job and just realized I missed!  I am changing the questions from today to the previous month.  It’s more accurate

How did I feel this past Month?

Well still mixed.  I am still not working.  I have been getting much needed rest.  It is grand not to wake in the 4 a.m.  hour.  Having no money – not so good.   I don’t feel right about decimating my savings.  I worked so hard to put that money away.  I was finally at a point where I felt comfortable.  I know life isn’t about being material, truly but it was nice to go to dinner at a nice place and not stress, to get nice “stuff”.  I am trying hard not to be angry and resentful as that takes away from me and only lets them win.  I do believe that the evil you do comes back to you so I know the person behind what’s been happening will get it back in spades.  The way the world and life works I may not see it and that’s alright.  I do know that this time though I am not going quietly into the night.  I am going to fight it to the best of my abilities and limited finances.  So, in a certain way it is empowering.  I have reflected on what I have walked away from.  I have always been a great walker. Uh, slightly sarcastic.  Instead of dealing with anything, I just walked away, sometimes literally.

What did you do for yourself this month?

See above.  The rest and exercise have been great.  A lot of reflection.  I have started to write more and reconnect with people.  I am also evaluating how I have and am living my life.  On the fun side, getting ready for the holidays.  The Elves workshop is this Sunday which gives me enormous joy.

What did I eat this month  and how did it make me feel

Trying to return to good eating slowly but surely.  It has to be the key.  What I have been thinking is that it really specific to each person within parameters.  So no gluten is a no brainer.  Eggs, not so sure.  Definitely non-processed.  Sugar is bad.  I don’t think it’s possible to cut it out completely but it can be taken way down.

Did I exercise?  What did I do?  How did it feel – I am going to the gym on a regular basis.  It’s showing in my waist but not so much my legs.  I am not walking enough now that I am not working.  This has been complicated by my fitness trackers not being accurate.  I understand for the holidays that situation is going to be fixed.  I am not getting the same addiction to exercise that I have had in the past.  It is partially due to the fact that I can’t do exercise classes.  I have been faithful with my Zumba but am beyond frustrated that I cannot do what I used to.  In my mind I feel the rhythm and I know how simple it is and my body won’t do it.

For whom or what are you grateful?  What matters most in life?

Blessed, especially at this time of year.  We had all the kids the night before Thanksgiving.  It fulfilled a dream I used to have.  I had a family around a table, laughing and talking and eating good food.  I feel grateful that despite not having a job, I have a home and we can eat.  Oh and yes, we somehow managed for now to have decent medical coverage so I can get the drugs I need to keep on walking

Do I have a higher purpose or driving force in my life?   Make a mission statement

Alright, no mission statement yet.  I believe in principles and integrity.  Years ago a minister told me I had an enormous capacity for joy.   I haven’t lost it this go round yet.  It’s important to share joy.  I tell my little “elves” that every year.  So, I hope that is something I will leave behind. And I stand on principle, proud of that.  By fighting back, I am fighting for others too.  At Zumba, I have been told I am an inspiration.  I have never wanted seriously to be a poster child.  However, if I can show people I believe in my life maybe they can too.

Conventional medicine  Well, I received the Biotin but unfortunately it is too expensive for me to get without a job and is never covered by insurance

Symptoms – Walking deteriorating a bit I think but I see it directly relational to stress.  I am weaker.  I had problems with a 2.5 pound weight the other day.  I used to easily lift 45.  I have had a UTI which also has impacted me.

What symptoms are most troublesome  – Walking as always. A bit wobbly too.

Do I blame myself for things – Same as always. Of course! Yes, I am still blaming myself for not being aggressive against this. However, getting back to me, slowly, slowly but surely!

How is stress level?

Moderate.  There are days it peaks for sure.  When I take money out of savings to live and when I have to charge things.  But not commuting is so huge.

What can I do tomorrow to make it better than today?  Eat properly, exercise, have an attitude of gratitude, be productive and positive.

Wishing all joy and health in this season of light and darkness.  We shine light in the darkness and then it ebbs into renewal.  Don’t you think?

November Warrior Check In

How do I feel today

Mixed.  I have been getting good rest.  Down side – I am out of work.  So,  I am not getting paid and there is confrontation in my future.  I am angry which is something that doesn’t agree with me.  However, it is an improvement of the stress that I have been undergoing since August.  I just want definitive closure which I don’t see for the definitive future.  It’s Sunday and I read the Times again!  I am slowly, slowly decompressing and getting back to me.

What did you do for yourself today?

I did my stepper and tried to recalibrate my tracker.  I am reading.  I will probably cook something healthy.  I will play with my tea business.  I calculated everything I have earned for the year so I can sort out my health insurance.

What did I eat today and how did it make me feel – Still thinking about food and making good choices.  I did do chocolate but I am doing so much less of it.  I am looking forward to cooking something from Two Moms  in the raw.

Did I exercise?  What did I do?  How did it feel – Well,  I did the stepper and will do so again.  I have been to the gym twice this week.  Being out of work, I will start going practically everyday as I know from previous experience, it’s the only way I will stay sane and healthy.  It feels good.

For whom or what are you grateful?  What matters most in life?

Ah, I am blessed.  Someone I knew a long time ago said I was one of the few people at school that was authentic and cool and still am.  Kinda validates what I am about.  Grateful that I have the wherewith financial and emotional to weather this storm.

I have an opportunity to focus on getting healthy.

Do I have a higher purpose or driving force in my life?   Make a mission statement

Driving force?  Well, I am standing on and committed to principle.  Hope it matters.

How long have I been treated with conventional medicine   I am going to start Biotin this week.Ampyra since April.  Baclufen.  I am seeing more and more about food.  I am thinking about mostly committing through the end of the year.  I should be at home and can couple it with exercise

The first time I had a symptom – June 2004 walking on the beach boardwalk.  This week I walked 11 blocks slowly during rush hour with a cane.  YeaH!

What symptoms are most troublesome  -still hung up on the ugly shoes!  And my hands seem to be weakening.  However, see stress rearing it’s ugly head.

Do I blame myself for things –  Of course! Yes, I am still blaming myself for not being aggressive against this. However, getting back to me, slowly, slowly but surely!

How is stress level?

Coming down a bit.  Last month, I was returning to uncertainty.  This month is uncertain in a different way.  I feel calmer all in all.  Not getting up around 4 a.m.  Is HUGE!

What can I do tomorrow to make it better than today?   Exercise, structure and move forward

Until next month.

Style and Grace and holding on to cry at home

I can’t tell you how many times I have said to myself hang on until you can get home and cry.  I was brought up not to cry in front of people, not my family particularly, but certainly the outside.  I have tried to live my life, especially when confronting obstacles and difficult situations, with style and grace.  It’s like a mantra for me.  Big girls don’t cry.  I have said “Style and Grace” every time I have been let go on a job.  I use it all the time, most recently in the situations I have been confronting on my job.  Okay lately,   I also take a bubble bath the night before potentially contentious meetings with Not Soap Radio – Bathing with Sharks.

I am getting tired of all of this.  I am hanging on.

So, I was not supposed to cry.  I didn’t receive my diploma on graduation day.  This was huge.  Additionally,  I never thought I would get married or have a wedding so this was going to be my day.  I was tapped on the shoulder and told I wasn’t graduating as we started the processional.  No one understood why I didn’t have my usual smile.  As we dispersed and I saw my parents, I started to cry.  My mother slapped me and covered my eyes with huge dark glasses.  I was out of work for ages and got a job.  I went in to have lunch with the owner.  He told me I didn’t have one; he had changed his mind.  Yes, here it comes another smack and dark glasses.  My husband was arrested and in jail right after my father died and I couldn’t get him out,  I sobbed on my sister-in-law till I wet her clothes.  Came home and started to sob.  My mother looked at me and said ” I thought I raised a grown up”.  And no, of course I didn’t cry when my parents died.  I gave both eulogies, no tears.  This comes at enormous cost. Yes,  I cry,  I gush rivers, just not publicly.  When I was diagnosed, no tears.  When the first physician’s assistant said “I think you have MS” I sobbed in the parking lot, not in front of her.  Maybe three times since 2008.

I am tired of holding on.

I had a meeting with the other ugly stepsister (work)  three weeks ago.  I thought I was being let go.  Stood outside and repeated Style and Grace, style and grace.  Summoned my grandmother’s spirit.  Walked into the room with my head held high and  SMILED.  Bathing with sharks.

So, this week:

I find out on my birthday that my health insurance company is closing.  Do you know how many years I had to wait to get covered for this drug?  It truly helps me walk longer and better.  If you saw me on the street you wouldn’t think so but it is better.  My new normal.  What happens with new insurance?  Scared.

Next,  I return to work and one of the ugly stepsisters wants a meeting with me to discuss what I do.  This is the woman that I reported to briefly.  I was like coyote ugly trying to chew my leg off when I was working with her.  So, once again we go through  “What do you do, how do you do it?” And  she is going to have someone who uses the word “wordsmith” to write something for me!  I can read the handwriting on the wall.

Husband has had a slip or several so I am back to being tense when I get home.  No real safe haven.

I had an appointment to discuss possible options yesterday.  Between the two meetings I literally couldn’t walk and was collapsing, bent over.

Today, I still felt still weak. Lots of training, walking, meetings.  Ran into guy who brought me back to this place. He’s been trying to save my job.  Calls me into a room so I thought I was finally getting the move and recognition.  NOT!!  My agent who handles my billing is going out of business.  No one else wants to take me on.  Essentially, this means I am out.  What do I do?  Go back to my desk and frigging smile!  Ok so I contact the trifecta- my doctor, lawyer, accountant.  In addition to my smile, I am known as a survivor.  Keep on murmuring style and grace.  My body is channeling all the stress and I lurch to the train.  They change the track and the escalator and elevator are broken.  Nearly fell going upstairs.  I do make it to the car.  My whole plan this afternoon was to get home like a pigeon and cry.  I started to cry close to home on the phone with my husband.  His response?  “Don’t be such a girl”.

No tears but my stress pattern is reverting to two I had years ago.  I used to have pre-fainting – pre hyposyncopia (sp).  I turn grey and my eyeballs roll  up in my head but I don’t faint.  Later years, I got palpitations.  Tonight both.  I know it’s holding the anger and the tears.  Now with this condition it goes through my body.

And tomorrow – style and grace.