October Warrior Check In

How do I feel today  -Better than I have in awhile.  I am going back to work tomorrow after a week off and I am dreading it for numerous reasons.  However, it appears the hurricane has passed us by, the sun is shining and I am focusing on the positive.  I have so much to be grateful for. I also feel that I am back on track.

What did you do for yourself today?

I read the Sunday Times, most of it, on Sunday!  I cooked something healthy and good.  I was indulgent and bought nail polish

What did I eat today and how did it make me feel – Eating right except for dinner tonight – will have small steak.  On holiday I did OK and tried to be in balance

Did I exercise?  What did I do?  How did it feel – Ah, every month there is a weak spot, still trying to calibrate Jawbone but I definitely have not walked nearly enough in the last week.  I feel weak but determined.

For whom or what are you grateful?  What matters most in life?

Friends and family.  Last night the boys and their girlfriends joined the nieces and I at a mystery dinner at the church.  The table read Reserved – “X – Family of 8″  It made me feel warm.  The fiancee declared in 10 months, I will really be a part of this family.  I was given beautiful presents for my birthday and a beautiful card.  I spent 4 days with one of my best friends on vacation last week.  It was restorative. I had all kinds of birthday wishes from near and far.  And as someone once said ” You know Santa and the Easter Bunny?!!!”  What more could I or should I want out of life.

Do I have a higher purpose or driving force in my life?   Make a mission statement

Ok, still a problem. Still believe deeply in joy.  In the last few weeks due to the situation at work where  I am no longer being allowed my medical accommodation,  I am planning legal action.  I have been told this will benefit other people.  So, there you go.

How long have I been treated with conventional medicine Ampyra since April.  On my birthday, I read in the Times that my medical insurance company is closing so we are scared that I will lose this drug.

The first time I had a symptom – June 2004 walking on the beach boardwalk.  Lately,  I have been using the cane which I am going to rename a stick more and more each week.

What symptoms are most troublesome  -still hung up on the ugly shoes!  And my hands seem to be weakening.  Same as last month.  Getting a little wobbly.

Do I blame myself for things –  Of course!Yes, I am still blaming myself for not being aggressive against this. However, getting back to me, slowly, slowly but surely!

How is stress level? Middling, as I have not been at the office Sept 23 but have to go back tomorrow and face the music.  I know I will survicw

What can I do tomorrow to make it better than today?   Continue to take positive steps in eating, exercise and most importantly the pursuit of balance.

Until next month.

My Birthday

Well,  I hit my milestone today.   I have been so wrapped up in this for the past year.  Finally, this week I decided it wasn’t all of that.

So,  I took time off from work and drove up to Finger Lakes to spend some time with one of my besties and husband.  Sunday night we sat outside on the deck and watched the blood moon.  A magical beginning.

Today we drove and saw art and did a little shopping.  And then great wine with friend.

I feel so blessed.  I may have problems walking but I am surrounded by love and new possibilities.  Both my stepsons and their girlfriends called me.  I had best wishes on Facebook.  Messages from friends when I woke.  Awesome card from husband.

I have hope despite all.

Age is a number and a troubling number at that.  I have never done well with numbers.  Can’t say I am looking forward but not looking back either.

I will make this last part of my life count!

I am so blessed

September Warrior Check In

I recently took one of those Facebook  quizzes and both my first and middle names mean warrior princess

How do I feel today  –   Mixed.  Recently, there has been a reorganization at work and my medical excuse is not being honored.  So, on the positive side  I slept till nearly 7 a.m. this morning.  And I am not allowed to work from home at all.  Upside, I am getting back in touch with me and what makes me tick and joyous.  Other side:  I am limited.  I am planning a tea with friends next weekend and am dependent on my husband to get things.  I have a wonderful tea set.  It’s upstairs boxed because he doesn’t like it.  It’s too far in the eaves for me to pull it out so I won’t be able to use it.  This frustrates and hurts me.  He is angry and moody today which also brings me down.  I realize this must be hard for him but it is harder for me.  I fell yesterday morning and that is upsetting him.  I am working on something, late as usual, that is pictures of both of us.  I was short some of me as a child and went upstairs to get a few.  It hurts.  I have no children.  My brother and I are estranged.  These photos mean nothing to anyone but me.

What did you do for yourself today?

Well,  I am taking stepson to lunch.  I am going back upstairs to straighten up.  I am planning my tea.  Maybe, just maybe I’ll get to read

What did I eat today and how did it make me feel – I have been moving more and more to eating in a way that will help me.

Did I exercise?  What did I do?  How did it feel – Replaced Fitbit with Jawbone and trying to calibrate it.  Gym is a possibility.  I am looking for a new job so want to be/appear stronger.

For whom or what are you grateful?  What matters most in life?

I have been thinking a lot this month about the stepkids.  I am so blessed.  And I get along with their girlfriends/fiancee.  I asked fiancee to lunch and she thought I was mad at her but accepted anyway.  How cool is that?  It was to give her something for her wedding day.  After a certain point I never thought I would have children in my life.  I guess I do. It’s hard for me to believe they care for me. It’s a great gift.  And one of the reasons I have them is because of my friends.  I have friends who are amazing lifelines to me.  When I first became involved with the boys they were my guiding lights.  I am blessed!

Do I have a higher purpose or driving force in my life?   Make a mission statement –   I still have problems with this one.   I had a minister who once said I had a great capacity for joy.  Let’s go with that one for now.  I do an elves workshop for nieces every year and I tell them it’s about spreading joy.

How long have I been treated with conventional medicine Ampyra since April.  The Ampyra continues to work.

I met a man with a walkaid device and that looks appealing

The first time I had a symptom – June 2004 walking on the beach boardwalk.  Fell twice at home recently but it’s due to stress.

What symptoms are most troublesome  -still hung up on the ugly shoes!  And my hands seem to be weakening.  Same as last month.  Being dependent or limited is driving me wid.

Do I blame myself for things –  Yes, I am still blaming myself for not being aggressive against this. Still!  I let go of me and who I am and could be.  This month thinking about the self sabotage

How is stress level? Very bad.  Work is worse and it’s having a financial impact.  Like Scarlett O’Hara, I’ll think about that tomorrow.

What can I do tomorrow to make it better than today?   Continue to get back in touch with me and what gives me joy.  Organize the clutter

Until next month.

When It Rains….

I am having problems at work.  Change in the organization and I am no longer allowed to work at home, even with the doctor’s note.  I am getting it sorted but in the meantime it’s having a significant financial, mental and physical impact. I have a letter from my doctor saying I should not be in the office when is 85 or more.  Me, I thought 90.  The problem is I commute and am in the subways.  The first time must have been 6 years ago or so and I arrived home with 102.5 fever.  I was in Times Square and all of a sudden could barely walk.  Doctor didn’t know what came first.  Until  I get sorted out, I am continuing to go in.  I see where this is going – oh she can’t be here and she can’t do the work.  So I struggle and husband comes in and helps me home.  It is expensive.

Wednesday, when I left they were announcing delays and signal problems.  Normally,  I would have turned around and gone home and worked.  Wednesday would have been perfect as I had training scheduled with Ireland and they had wanted it early but in the office my best offer is 730 a.m.  The ride which is usually under an hour was almost two and a half.  I can’t sit or stand for long times.  Then just as we started to move,  I heard for real for the first time “Is there a doctor, medical personnel or law enforcement on the train.  If so, please come to car number in the front of the train.”  Now,  I get out in NYC, people are late plus it’s peak so a pushy, fast mob.  Exactly why I travel alternate hours.  I miss my pill which helps me walk.  No water and it can’t be broken apart.  Get on the bus and they announce a detour as the street is closed.  I can’t make this stuff up!

My husband can’t come in and help me because the trains aren’t working,  I have to leave early to avoid any mess.  I do make it through the stations in the high heat.  I arrive at Penn, with  4 minutes to spare for a train to where I need to go.  I have to tell you I love travelling with the construction workers.  They pick me up when I fall and super polite. I had to walk downstairs – numerous offers of help and no one pushed me on the train.  I get a seat!  Settle in like a bird in a nest.  Announcement:  We are experiencing equipment problems.  Really!  Luckily, it sorted out.  I was so grateful.

Cut to this morning – I have on a white toile dress.  Get my coffee, granola with milk, walk into my office/den and left toe goes.  Everything flies all over the place.  Upside nothing broke – not my body, not the cup, not the bowl.  And miraculously, not a drop on the white dress.  I know I fell due to the stress!

But I am now off for a few days!

Evaluating, Instincts and Perspective

It’s been a hard few months for me.  Particularly, the last few weeks.  I very rarely admit it but I have a streak of a workaholic in me.  Years ago, one of my friends told me I was the same as her except I did the extra work at home in the bathtub and in my bunny slippers.  My assistant used to go “Grrr, I see you wrote this in the bath again.”  That situation ended badly.  I was in that job for nearly 9 years.  I increased their business.  I literally made myself physically ill and as I have mentioned the roots of my present condition lie there.  I went to Asia on business when I could barely talk or breathe.  Forget experiencing Asian cuisine in Asia; every place I went they poured soup and tea down my throat.  Here’s what I did:  I left Taiwan at 11 o’clock in the morning, landed in LA 11 a.m. the same morning and worked till 11 p.m.  The men always stopped in Hawaii with their wives.  I  flew home to NY and collapsed in JC Penney.  Several years later I was let go from that company.  It was awful.  I had invested too much of myself.  I was left without myself.  I was severely depressed.  I got married.  Yes, I know.  And that made everything so much worse.  I was unemployed or under employed for 10 years and then I got this job.  Financially, I was back.  The first four years as an employee were great.  I left it at the office.  I worked late once or twice.  There was a downsizing and I was let go.  I said “Thank you.  Summer on the beach with shells in my hair.”  My condition manifested itself for the first time that summer and we put it down to stress and lack of activity.  Working, I walked miles a day, literally.

Cut to the present:  My life has been out of control and out of balance.  I went back as a part time consultant.  It was never really part time.  I joke the reason I was approved for my mortgage working part time was a major project went live the month they looked at my financials and I was doing over 40 hours a week.  Well, once I went back full time I started at around 37.5 a week.  I told my manager when I started back that  I knew hw he was and it would be more.  He swore to me I could be out the door by 4:30.  Well, that lasted a few weeks when I was told they needed more time.  Our agreement was that I could do it at home.  For years, I have done nights and weekends. 2007 – 2008 averaging 50 hours a week.  Note the word average.  Once this condition began to impact me I worked more and more from the house.   I work in an IT department so it’s relatively technologically advanced.  I laugh as every other Friday from home I am in a meeting with New York, New Jersey, London and Ireland.  This year even though I worked from the house I have been averaging closer to 45 hours a week with a lot of weeks 50 – 60.  Yes,   I do bill by the hour.

Recently, the two people I have always worked with except for a hellish 6 months were reorganized out of my area.  First hint – no one knew what to do with me and I heard unofficially I was going back to Hell.

In the interim, the group head starting signing my time sheets August 1.  I worked 48 hours one week to deliver a major project.  She said it was over time.  I said you owe me a lot of money then.  Upshot, not allowed to do more than 40.  Okay, I can live with that.

I work remotely on Friday and have done so for a few years or very, very short Fridays in the office.  It  is too dangerous for me to commute with the weekenders and I do have fatigue.  I have a doctor’s note.  I usually work longer on a Friday as I don’t have to commute.  The doctor wrote me a letter not to work when it’s 85.  This hurts as remember, summer on the beach with shells in my hair.  She apparently is not honoring this.  This means unless  I come in and jeopardize myself I lose a week’s pay a month.

A friend texts me Thursday night that the company has posted a job opening for Learning and Development.  I look it has been written to exclude me – must be able to sit or stand for long periods.

So, I  find myself in the same position I was over 20 years ago.  I did it again.  I put my heart and soul into this.  I cared. I did their work at the expense of my life.  They would call it scope creep at my job.   I can’t believe I bought into it.

I used to work in the garment industry and was laid off all the time.  I just had a sixth sense as to when it was going to happen plus someone would tip me off, too.  The only time that didn’t happen was when I was let go from my short interim position while I was doing little part time for the bank.  For the last three years,  I haven’t been feeling right there.  I have very positive moments and very positive reviews.  However,  this morning I said to myself “Face the facts.  You are going and sooner rather than later.”  I already had started taking things home.  However, when my credentials/capabilities were questioned. I brought in framed copies of my certificates.

I find myself feeling sad, nervous and betrayed.  I have to hold onto the belief that someone will hire me on suitable terms even though I am technically old, limp and use a cane.

I am resilient.  I always try and see the upside.  So being home for four days has been a blessing.  I am getting to catch up on my life.  I spoke to three friends on the phone yesterday, a luxury.  One was one of my exes (yes me and the eternal exes) and he had been with me for part of the first time.

I am approaching a milestone and am frighteningly aware of my mortality.  But this is an opportunity for new horizons and new possibilities as I approach this.

August Warrior Check In

Life is still intense. I am thinking about the “default future”

How do I feel today –   Pretty crappy.  I was in a slightly manic phase the last few weeks.  I couldn’t do things fast enough.  I knew I had to crash and I have.  I put in a high stress over 50 hour workweek this week.  Bed late every night.  I made a presentation to our head on Friday.  Well, all I can say was it wasn’t negative.  It is hard to live with the continual uncertainty about the job.  There never seems to be enough time.  I am a Libra and feel seriously out of balance.  I need to clear the decks and can’t.  I have started a new venture except I haven’t.  I have the skills and the tools to rock it and little Miss Sabotage strikes again.   The MRI shows no change but I seem to be getting worse.  I  think  I am going to look into genome testing.

What did you do for yourself today?

I tried to sleep late.  I read the Sunday times,  yeah!  Straightened up a bit.  Sent in a job application,  sat outside in the gazebo. Did NOT go grocery shopping or any kind of shopping.

What did I eat today and how did it make me feel – Getting back to clean and it’s the right thing

Did I exercise? What did I do? How did it feel – No excuse not to go to the gym and I didn’t.  Miss Sabotage.  My fitbit has been wonky lately and I know that I had at least two days closer to 12,000 steps.  Ain’t drugs grand?  But zip didn’t record

For whom or what are you grateful? What matters most in life?   I am blessed with the most amazing friends, truly.  I have a husband who watches over me.  I continue to have possibilities.  And this year, beautiful flowers in the garden

Do I have a higher purpose or driving force in my life?   Make a mission statement –   Never give up?

How long have I been treated with conventional medicine Ampyra since April.  The Ampyra continues to work.  I am walking more with less fatigue.  Friday high stress day and took subway to Village during rush hour

The first time I had a symptom – June 2004 walking on the beach boardwalk.  Think it’s time to add last time -off balance, weak knees

What symptoms are most troublesome -still hung up on the ugly shoes!  And my hands seem to be weakening

Do I blame myself for things –  Yes, I am still blaming myself for not being aggressive against this. Still!  I let go of me and who I am and could be.  Same as last month

How is stress level? Skyrocketing with work issues

What can I do tomorrow to make it better than today?   Rest, take a step back.  Contemplate that default future and SMILE

Until next month.

Flip Flop Girl

Somehow I never posted this:  And it’s summer and no flipflops:

I love flip flops.  I always have.   When I was little, the other little girls wore them.  I wasn’t allowed except for the pool.  We called them zorries or thongs.  My mother called them slam patters.  My mother had very definite ideas about children and shoes.  In the spring I wore saddle oxfords, white.  They had to be polished every Sunday night with that horrid white polish.  As soon as I was old enough not to wear them.  They became fashionable.  It is one trend that will never work for me.  In the summer, something like the Greek fisherman’s shoes.  Buckles and perforations.  In the winter, suede ghillies that had to be brushed.  Not fun.

I got away from home and started wearing them in summer on the beach.  They were like 19 cents and unfashionable.  I had more than one pair.

I met a man who wore flip flops and loved the beach.  Well, I still have his flip flops.  I would get all colors and kinds.  I would wear them with everything.

I went to a party in a turquoise mini skirt at the start of fall with black patent flip flops with a fake diamond in the center.  Diamonds on the soles of her shoes.

Then I married someone who didn’t wear flip flops and things just spiraled downwards.  He didn’t like the beach because there was sand.  I felt like I couldn’t breathe.  I left and moved home to my parents.  By that time, my mother would wear them to water the lawn.  And I did have a few that I wore with censorious views.

I moved in with another man, older.  He knocked the joy right out of me.  I left.

I got an apartment and bought pink platform flipflops with pink flowers.  My best friend same over and said Thank God you are back.  “What do you mean?”  “You are wearing flip flops again”  From then on, it was flip flops in the summer, even at work.  And I work in a bank.  During the blackout of 2003, I walked out of New York City in a pair of black platform flip flops with glitter straps.

People bring them back for me from trips.  I have ones from the Far East and from Hawaii. I could go on and on.

And up until two summers ago, I was still wearing them at the bank – gold ones, silver ones and black patent. The gold ones are still under my desk.  At one time I had over 10 pairs of shoes under my desk.

I can’t wear them any more!  My feet no longer grip them.  This destroys me.  It’s my persona.  I miss me.  Instead I have been reduced to tie shoes – back to my childhood.  This is not right.  I mean really. No flip flops?  Also no beach, no walking.  This cannot continue.

So what do I do?  I’ll tell you, I haven’t thrown out a pair, even the pink platform ones.

With work this summer, maybe I can wear them again.

Teeth and Age

I read a long time ago that if you dreamt of losing your teeth, you were dreaming about age.  In a non-coincidence just before my 30th birthday I dreamt all my teeth fell out.  Now I am older and definitely have teeth issues.  In fact, I believe teeth are at the root (Ha, not ha) of my present predicament.  The hole in my mouth.  Recently, the bridge and crown covering that rogue tooth was removed.  The remainder has to go but I have been trying to hold off as I have an important meeting with the head of my company July 31.  I need to be able to talk and look healthy.   And yes,  my health is important but if I have no job or a miserable one, my health will also be impacted negatively.

Today, I took our 12 year old niece to a bracelet making class for her birthday.  Just the two of us at an adult class.  She told me how she feared 13.  It’s the end of childhood and she will be a teenager.  A child after my own heart as she has 11 months to go.  Today is also the day of my high school picnic. SUSAN GRADEvery year on this weekend in July, my high school which closed in the 80’s has an all class picnic.  I grew up in Levittown and as I explained to my niece not only were there people in your class but whole families you grew up with.  I literally was in the same class with one boy from second grade through my first year of college  I went two years and then stopped.Susan and Jerry Dumas July 2012  I find I revert to high school and try to disappear. I was quiet and odd.  Now I am louder and odd.  I explained to my niece when I was at school being smart was not looked up to.   I also hate looking the way I do.  The first year I went without the brace.  The second year I had to.  Now, I have to use a cane.  I can’t STAND the OMG what happened to you!!! And the pity.  Don’t tell me it’s in my mind either.  Because of mobility, it’s hard for me to get up and move around.  The first year we went my husband was anxious as he thought he wouldn’t know anyone.  He is younger than me and grew up several towns over.  You can tell where this is going.  He recognized more people than I did.  Recognize is relative.  We are older and balder and broader and greyer. Me,  I am the gimpiest next to the guy that my husband knew who lost his leg in a motorcycle accident. So,  when I think I see someone I recognize I can’t walk quickly enough to talk to them.  And here’s another reason I don’t go anymore, every year after the picnic someone dies!  First year someone got run over by a cab, 2nd year a guy who grew up behind me was hit by a garbage truck, last year someone from my class was killed by a wrong way driver.  Why tempt fate?

So jewelry with niece, leather wrap bracelet, nicer than hippie ones, safer than picnic.  However, all the nostalgia and seeing things again through 12 year old eyes.  We leave the class and part of the rogue tooth crumbles and comes out.  Irony and age.  Now I have another hole in my mouth, more poison loose in my body.  A stunning reminder of aging on a reunion day.