Still Fighting – Zumba

Last night I went to Zumba.  I have been going regularly for over five years with the same instructor and almost the same group.  I love this group.  It’s a microcosm of life the way I always envisioned it.  There are women of all sizes, shapes, weights, colors, races.  There are even deaf-mutes.  They feel the vibration of the music.  We all have fun.

The first time I went was with a friend who wanted to go to a session at the library.  It was downstairs and I thought I wouldn’t be able to do it but when along for the ride.  She couldn’t do it and I could.  Going upstairs was just the tiniest bit difficult.

The first season I was able to dance in the front.  The music and the dancing connect me with my childhood and my mother.  As I have said before in my house, we danced!  And the music is Caribbean.  I feel it in my heart and bones.  I was finally old enough and secure enough to  just be and do it!  At the end of the first year one of the women asked me if I was recovering from a stroke.

I had to change over the years to being by a wall for stability and balance.  Then in 2012 I had to start wearing the spectral leg.

Two years ago the venue changed.  I had to cross four lanes of traffic without a light.  I missed most of the first winter till it became light.  Now, I need help.  Last year with all the snow and ice, I missed again.

The sessions only run from September to June.  I did most of the classes in the fall.  December there were only two classes.  It started again last week.  It’s now in a gym and I forgot the sliders for my shoes.  The next session I had hurt my back and couldn’t make it.  Last night she started off by playing one of my favorite old songs.  This used to be a no brainer.  I could barely do it!  And then more of the music that sings to me.  What’s horrible about this is my mind  doesn’t realize I can’t do it.  I feel it and then my body is so not doing it.  Yesterday, I used our treadmill for 10 minutes and then went to the gym.  A newer person told me I was doing    great last night.  To me I was not.

So, what’s next?

Well, I am back on track pretty much food-wise.  Also, amped up the steps so it was a little better.

I am angry.  I refuse to continue down a deteriorating  path.  I am going to fight harder – better food, better exercise, better rest.

My goal?  Do a full class by spring.

Keep on dancing!

Auld Lang Syne

New Year’s Eve of course has been a topic of conversation for the last week or so. It’s been discussed with the kids, online friends and my friends.  I always say that I don’t like it and I can count the number of times I’ve been out on both my hands.  I preferred being home, either with my loved ones or by myself.

So a walk down the New Year’s of my past.

The first time I went out I was a teenager.  I am thinking about 16-17.  It was a group of girls – Debbie L, Susan W, Judy G and me.  We had become friends through political action.   It wasn’t a sleepover, someone’s parents must have picked us up.  All I remember was almost from the beginning, I wanted to be home.  I had been looking forward to it, first New Year’s out and all that.

Next time was in Jamaica.  My mother and I went down to see my Grandmother.  I already knew I didn’t like going out.  My favorite cousin asked me to come out with him and his wife.  I said no.  Grandma said yes.  I thought it might have been the last New Year’s I would ever spend with her and it was.  She died in December the following year.  She insisted.  So at the last minute I said yes and put my gown on.  Cousin rustled up a “date” for me with the name of Elvis.  Elvis was the same age as my baby brother. It was a fabulous party in Kingston.  There was a private tennis court, in ground pool.  I was MISERABLE.  I put such a damper on things that we left almost immediately after midnight.

Glutton for punishment.  The next year I went out with my two friends. See my previous blog “Politics, Friendship and Mortality”.  That so did not work out.

Skip to almost a decade later.  I was seeing someone, an alcoholic in recovery, my specialty.  He asked if I wanted to go to a party.  I told him I didn’t want to go to anyplace crowded mostly with people I didn’t know and noisy.  It was a Black and White themed party but he told me it wasn’t formal.  You know me and my clothes. I had the gowns. In fact, when I was married the first time, my mother-in-law didn’t understand why I didn’t want a wedding gown.  I was gowned out.  We arrive at the party.  It is formal.  We are the only two people not dressed formally.  It is packed with people I don’t know, noisy and crowded and he doesn’t kiss me at midnight.  I miss my family desperately.

Ah, another one.  I broke up with above.  Very messy and a story for another day.  My family always hated him.  My brother announced that I couldn’t be alone and scooped me up for a party at his former girlfriend’s house.  We are that kind of people.  Miserable again and all I can remember was that the little children had dirty feet.  I made my brother take me home before midnight.

Fast forward almost a decade.  I was mad at the man (we always got back together) I had been to the previous party with and thrown him out the house on Dec. 29.  He had turned on Howard Stern on my radio.  What can I say?  I went out that night by myself and met someone.  We went to brunch the next day and New Year’s Eve he asked me out to dinner.  We went with another couple and it was bearable and I was home well before midnight.  Everyone said I must like him since I went out on New Year’s  I guess.  I married him disastrously.

Two years after that we went to Watch Night service at the church.  I liked it. He hated it. There were less than 5 people there.  One of whom was 90!  Praying the New Year in made sense to me.

The marriage was done by the following year and I spent the next years either home with my parents, or alone or had dinner out with the man I lived with for awhile.  Even then, I hated being away from my family.

Just about a decade passes and I am dating Buster the Biker.  He has disappeared for most of the week after Christmas but we have plans to go to the bar we drink at.  My brother is there.  I don’t hate it but am not really happy.  I wanted my parents. Continue reading

Christmas Pudding and the Ghosts of Past, Present and Future

I made Christmas pudding aka Black Cake aka fruitcake aka plum pudding this week.  It’s always been part of my life.  My grandmother made it.  My mother made it.  My aunts make it.    I have always loved it.    I am not a quiet personality.  One of my supervisors told me some years ago that had I been growing up now I would have been diagnosed as ADHD.  A facile explanation for sure.  But this is an old family story.  My Grandma had mailed pudding to my mother.  My mother was talking to my Bubba and noticed silence.  I was two.  Upon investigation she found I had gotten into the pudding.  Bubba told her well at least I would get drunk and pass out.  Uh, that’s not how I get drunk to this day.  I get hyper and very active.  Child is father of the man.

The pudding is one thing that I cannot give up.  It’s an integral part of my Christmas.

My mother made it all by herself when my brother was two and I was around five.  She declared that she wanted to jump out the 6th floor window and would never make it by herself again.  It’s an intense process and truly needs a family.

I was reflecting on how things have changed.  Some parts of the pudding are easier now.  When my mother was a child she remembered the servants tending it over a fire in the yard.  As this was in the tropics, it must have been quite the undertaking.

Traditionally, we made pudding the Saturday or Sunday just before Christmas in the last few decades.  Before that when I was little, it was done earlier as it had to be posted to Jamaica to arrive before Christmas.  That too, was a process. The correct tin and box had to be found, the brown paper wrapping and string, the customs form, the trip to the post.  Of course, if someone was coming or going a chance could be taken to smuggle it in luggage.  The opportunity did not frequently represent itself.  And of course, one received puddings too.  I now send pudding to my father-in-law who states it is the closest thing to Irish plum pudding. Of course, we are all colonials.    We send it after Christmas so he can enjoy it on his own, without sharing. I do share it with those who know it.

This year I made it the Tuesday before Christmas.  I am not working so not bound by the weekend.  I have only done it once or twice on Christmas Eve.  Once recently, due to work.  It made me feel unsettled. The  last Christmas my grandmother was alive, I made one by hand Christmas Eve at my aunt Hyacinth’s.  We had landed from New York that day.  Hyacinth hadn’t done it.  In fact, it really wasn’t a true pudding but more of a raisin cake/pudding.  It was made with raisins that had been soaked with I am supposing brandy.  Hyacinth was big on having a dram of brandy after dinner with a little cigarillo. It was flavored with rosewater.  I did by hand and mixed and cooked till literally around midnight.  I woke Christmas morning with blistered hands. I don’t think we even tried to smuggle our own in.  My mother was aghast that Customs made us unwrap all our presents.  By the way, it was agreed, my pudding, such as it was, was excellent.

Pudding is a huge process and starts months before.  Fruits need to be bought and in my family soaked in port, sometimes with a little rum.  We used to have a brown Mott’s apple juice bottle for the purpose which we kept in the garage.  My husband recycled it by accident a few years back.  My mother would set a box of raisins on a cookie sheet covered with cheesecloth and set it out on the backyard table in the sun to “plump”.  And then the bit I hated and have dispensed with, we had to cut the raisins.  This was done one by one and was a sticky mess.  This practice was dated to when raisins weren’t necessarily seedless.  Then prunes had to be stewed and pitted.  Another mess.  I buy them pitted most years and sometimes I stew, others not.  In the old days the pits were dried than cracked and the kernels also went into the bottle also.  I did that once by myself and had one of those jumping out the window moments. Then mixed citron.   We have had problems finding this in our regular market the last few years.  We were getting desperate.  Bought it this year for $10.00 and my mother and grandma would be twirling in their graves at that thought.

In the past, in the afternoon the day before, we would sit around the table and crack a pound of walnuts.  These go in last as my grandmother said any earlier made the pudding “mecky”.  I buy them shelled.  I am deeply grateful that I can afford to do so.

The night before we “rubbed” a pound of dark brown sugar and a pound of butter together. The purchase of the butter had to be  I did this by hand at Hyacinth’s.  We used to use a hand mixer.    The mixture has to be completely incorporated and change to a pale beige color.  How we didn’t burn the mixer out, I do not know.  My father, who never, ever tasted it would always fret that it would spoil.  They argued about it every year.  I have a Kitchen Aid.  It takes minutes and it’s done in minutes.

The morning of is very busy.  The tins must be taken out and set up.  When I was growing up, we used a pudding basin that must be easily over 100 years ago.  This was supplemented by three tins dating back to WWII.  These were made at that time not bought.  They had very sharp edges and as the years went by began to fall apart.  About ten years ago I mentioned the tins were shot and a West Indian woman told me that there was a kitchen supply place by the office where I could get them.  I did!  They were inexpensive and easy.  Another change.   The tins need to be greased and lined.  We used to do it with Crisco and the saved papers from the butter, and waxed paper.  I use cooking spray and parchment paper.  Cutting the wax paper was always an ordeal.  My grandmother made clothes without a pattern and cut freehand.  My mother cut perfect circles.  And then there was me.  I can’t cut a straight line with a paper cutter.  I lost that job.

Then pots of water must be put to simmer on the stove.  They have to be the right size to accommodate the puddings.  The kettle needs to be full and simmering too to be ready to replace water in the pots as needed.  One of the favored pots is my baby bottle sterilizer.

Next my Gran’s big bowl needs to be taken out.  When Grandma and Ma were doing it that was where the butter and sugar had been rubbed.  It’s a massive antique bowl.  I see smaller ones in antique shops and they are quite pricey.  We used to have a nested set but as this one is only used once or twice a year, it survives.

Assembling the rest of the ingredients:  It requires a dozen eggs.  They should be separated and the whites and yolks beaten.  My mother didn’t separate.  My Gran used to and whip the whites by hand.  In my teens, they compromised and separated but didn’t beat.  Ah, mixers.  I separate and whip the whites and beat the eggs.  This is when my husband starts to implode as he contemplates masses of dishes.  Next is the scale.  Again, a once a year item.  My mother got it with Plaid stamps.  Our recipe require 3/4 pound bread crumbs and 1/4 pound flour. This then gets sieved a cup at a time alternating with the fruits at the end.  First off, I stopped sieving the flour.  It’s a different time.  The flour is fine enough. Then we used to definitely sieve the bread crumbs.  This requires two people, one mixing, one sieving.  I used to sieve then I graduated to mixing.  Now, I do it on my own.  No sieving!

The butter and eggs get transferred to big bowl and now we start mixing by hand.  We add rosewater, vanilla and the secret ingredient – black currant jam.  This jam is so hard to find some years.  The spoon needs to stand by itself when the mixture is right.  This has been challenging in the best of times.  Now, I am weaker and older.  I need help.  My husband stepped up to the plate.  At this point, I feel incredibly sad.  My frailty bothers me.  I remember the last time I did it with my mother, too.  She had dementia but I didn’t realize.  I couldn’t imagine how she had forgotten how to do it.  That night was one of the last times my brother and I had cordial relations.  He stopped by the house, said I had to get out of the house and took me out. I got blissfully, blessedly drunk.  Jumping out of windows was not an option.

Next step the mixture gets divided into the tins and the tops get sprinkled with flour to seal them.  The tins are then shut and in the old days we made a flour paste to put around the edges.  It was my first job and I hated it.  Now I have proper tins that lock.  The next bit was my father’s and he bitched every year.  The old tins had to be tied with string without upsetting the contents so that the tins could be raised and lowered.  Much screaming and gnashing of teeth.  I have proper tins and my husband is amazing at knots so all that is needed is a loop at the top.

Onto the stove to steam for four hours.  The house begins to smell insanely of liquor and Christmas spice.  This drives my husband crazy as he is allergic to the nuts and can’t have any.  You have to keep watch over the pots to make sure there’s enough water.

It’s always a long day.  This year I was destroyed.  I literally hurt in all ways.  I hate not being strong enough.  I honor the past.  Some years it’s easier than others.  This year I miss my mother and my grandmother.  I know Grandma would not let me do it my way, the new overtaking the old.  They were precise women with a sense of what was the right way and wrong way to do things.

The puddings are served with a brandy hard sauce.  Not in my house, can’t take the chance on the alcohol and husband.  More adjustments.

At the end of the day, this is Christmas – family, memories, tradition.

Merry Christmas!

Politics, Friendship, and Mortality

I just found out a few hours ago that one of my childhood friends passed away in his sleep last night.  Losing anyone so young is hard.  Well young is relative but I still feel relatively young and as my former sister-in-law said earlier this year “anyone dying before 80 is young.”

So, my mother worked with his father and we grew up on the same street.  His dad drank heavily and so did he but that’s what we did then.  He transferred in high school to an exclusive Catholic high.  I went to college with 6 boys from that school.  They told me that his drinking so disgusted them that they themselves threw him off the bus.  We used to drink at the same bar in our late teens and early twenties.

A memory – the New Year’s Eve  I was 21, I ended up at a party at his house with my two best friends.  The other Tress(same name) and I had dates.  Let’s put it this way, she was going out with Donnie and when I was around we used to double with his best friend who was called Hoppy, seriously.  He was far from hoppy but around 6 foot something and a solid 200 pounds plus.  He was a time filler for me.  Our other friend was just along for the ride.  Our original plan was to have a sleepover at my parents and then the guys came up with this party plan.  Somehow towards the end of the evening we ended up at J’s house.  His parents were there and some others too.  Not mine; not only did they no longer go out on New Years anymore but my mother didn’t like his father – read heavy drinker.  And it must have been very heavy as the first time I was drunk in public  was at her boss’s home(same company)  when I was around 16.  Different era, different mores.  Anyway,  Hoppy takes me over to his parents “Ma, Dad, this is the girl I have been telling you about.”  Big shock to me.  I don’t, didn’t do relationships, especially at that age.  So I am doing the drunken nice girl chat with parents and when I get away, M,  my other friend is in Hoppy’s lap, cooing to him “I want it and want it now.”  Different era, stumbled out of the house and walked the two long blocks home including one block that was a ballfield.  And it was a four lane road opposite parkway woods and a parkway.  A drunk 20-something couldn’t do that now.  Went into the house and my parents called out and asked where everyone else was.  The other Tress is with Donnie at J’s house and M?  M is f*cking her brains out with Hoppy”  Now you have to understand that was a big evil word then and I am known for not using “bad” words.  Upshot?  Parents yell at me for the profanity and M  comes in much later.  The other Tress never spoke to her again.  I am more forgiving but have to admit that I saw her in the subway 20 years ago or so and she was completely grey! Revenge is a dish best served cold.

At that point in time,  J was getting his life back together.  We used to hang in the same bar and have drinks. He was working at the local grocery store stocking frozen food.  He was going back to school.  He was very, very smart.  We had always been in the advanced class.  Then he said he made a girl pregnant that he didn’t even really like (it may have been the alcohol talking) and that was it.

Fast forward years and the advent of FB.  He was mad crazy about his grandson and was a successful guy.  Our high school always has a picnic and three years ago, I went.  Topic for another day.  There’s a candid shot of the two of us jabbering away.

 

But and there is always a but, he was far right and I am far left.  I grew up in Levittown and far right is the way most people lean but back in the day things didn’t seem as absolute.  I always knew that my views were not held by most.  J and I had a teacher in 7th grade who on reflection probably was in the John Birch society.  I vaguely reflect an argument over my not saying the Pledge of Allegiance with J.  Still, see above, we drank together.  However, I just couldn’t take it on FB.  As we and society have aged, we have become more polarized.  I hate hate speech.  Uh, yeah Levittown – 99.6 or 99.7 white when I was growing up.  I was at a high school dinner in Levittown a few summers ago and they were talking about how Nixon was right with Watergate not ‘Nam but Watergate.  Put Obama into the picture and just imagine.  I have only unfriended one person on FB and it was another elementary school onwards person with racist hate.  So, I hid J.  I only saw innocuous likes.

I knew he had moved back onto the Island from a neighboring state.  Today,  I see that he was right here in my town.  He was truly a part of my growing up.  Because I hid him, I didn’t know.  We could have and should have been able to move beyond politics to that common childhood.

When did we as a society become so divisive?  I recently read that people are deciding where to move based on the overall political makeup of an area.  What happened to us?  Where is the veneer of tolerance?  Fake it till ya make it works sometimes.  We are cutting off discourse and therefore growth.  I am guilty.  I am thinking of what I missed the last few years by cutting J off.  It makes this loss huger.

We don’t know what Fate holds for us, why waste time.

I mourn for J and for missteps.

Carpe Diem.  RIP J and I’ll be lifting a glass to Auld Lang Syne.

December Warrior Check In

Oh my.  I am not working a job and just realized I missed!  I am changing the questions from today to the previous month.  It’s more accurate

How did I feel this past Month?

Well still mixed.  I am still not working.  I have been getting much needed rest.  It is grand not to wake in the 4 a.m.  hour.  Having no money – not so good.   I don’t feel right about decimating my savings.  I worked so hard to put that money away.  I was finally at a point where I felt comfortable.  I know life isn’t about being material, truly but it was nice to go to dinner at a nice place and not stress, to get nice “stuff”.  I am trying hard not to be angry and resentful as that takes away from me and only lets them win.  I do believe that the evil you do comes back to you so I know the person behind what’s been happening will get it back in spades.  The way the world and life works I may not see it and that’s alright.  I do know that this time though I am not going quietly into the night.  I am going to fight it to the best of my abilities and limited finances.  So, in a certain way it is empowering.  I have reflected on what I have walked away from.  I have always been a great walker. Uh, slightly sarcastic.  Instead of dealing with anything, I just walked away, sometimes literally.

What did you do for yourself this month?

See above.  The rest and exercise have been great.  A lot of reflection.  I have started to write more and reconnect with people.  I am also evaluating how I have and am living my life.  On the fun side, getting ready for the holidays.  The Elves workshop is this Sunday which gives me enormous joy.

What did I eat this month  and how did it make me feel

Trying to return to good eating slowly but surely.  It has to be the key.  What I have been thinking is that it really specific to each person within parameters.  So no gluten is a no brainer.  Eggs, not so sure.  Definitely non-processed.  Sugar is bad.  I don’t think it’s possible to cut it out completely but it can be taken way down.

Did I exercise?  What did I do?  How did it feel – I am going to the gym on a regular basis.  It’s showing in my waist but not so much my legs.  I am not walking enough now that I am not working.  This has been complicated by my fitness trackers not being accurate.  I understand for the holidays that situation is going to be fixed.  I am not getting the same addiction to exercise that I have had in the past.  It is partially due to the fact that I can’t do exercise classes.  I have been faithful with my Zumba but am beyond frustrated that I cannot do what I used to.  In my mind I feel the rhythm and I know how simple it is and my body won’t do it.

For whom or what are you grateful?  What matters most in life?

Blessed, especially at this time of year.  We had all the kids the night before Thanksgiving.  It fulfilled a dream I used to have.  I had a family around a table, laughing and talking and eating good food.  I feel grateful that despite not having a job, I have a home and we can eat.  Oh and yes, we somehow managed for now to have decent medical coverage so I can get the drugs I need to keep on walking

Do I have a higher purpose or driving force in my life?   Make a mission statement

Alright, no mission statement yet.  I believe in principles and integrity.  Years ago a minister told me I had an enormous capacity for joy.   I haven’t lost it this go round yet.  It’s important to share joy.  I tell my little “elves” that every year.  So, I hope that is something I will leave behind. And I stand on principle, proud of that.  By fighting back, I am fighting for others too.  At Zumba, I have been told I am an inspiration.  I have never wanted seriously to be a poster child.  However, if I can show people I believe in my life maybe they can too.

Conventional medicine  Well, I received the Biotin but unfortunately it is too expensive for me to get without a job and is never covered by insurance

Symptoms – Walking deteriorating a bit I think but I see it directly relational to stress.  I am weaker.  I had problems with a 2.5 pound weight the other day.  I used to easily lift 45.  I have had a UTI which also has impacted me.

What symptoms are most troublesome  – Walking as always. A bit wobbly too.

Do I blame myself for things – Same as always. Of course! Yes, I am still blaming myself for not being aggressive against this. However, getting back to me, slowly, slowly but surely!

How is stress level?

Moderate.  There are days it peaks for sure.  When I take money out of savings to live and when I have to charge things.  But not commuting is so huge.

What can I do tomorrow to make it better than today?  Eat properly, exercise, have an attitude of gratitude, be productive and positive.

Wishing all joy and health in this season of light and darkness.  We shine light in the darkness and then it ebbs into renewal.  Don’t you think?

Thanksgiving and My Soundtrack

Like I’ve said before, in my family, for holidays, for anything, we danced.  I find myself now barely being able to dance, let alone move.  We have the ipod on with one of my playlists.  I am maudlin.  I think it’s safe to drink wine.  My cheeks are rosy, my body is trying to move and I am thinking and remembering – songs from my playlist

Tainted Love – Soft Cell

I knew about AIDS long before the general public.  It was 1980 and Bobby O’Hara dumped me, again.  For what he told me was another woman.  I was working at the ubiquitous Izod, hating my job and my life.  Gary G. was gay and sat next to me.  He had been dumped too.  He would sit next to me in the afternoons and sing Tainted Love.  Little did I know how apt it was.  Gary told me about AIDS and gave me condoms.  He told me about this disease.  Ah, the cart was before the horse.  Bobby didn’t leave me for a woman but for a man.  Poor closeted boy. Midway through 1985, Bobby had died of AIDS.  I was safe though I didn’t know that for years.  Tainted.  Great way to get rid of unwanted attention and sometimes unfortunately wanted “My boyfriend died of AIDS”

Thunder Road – Bruce Springsteen

This song kept me going at least once. It’s one of my anthems. I grew up in Levittown.  One summer I played it over and over.  “It’s a town full of losers and I am pulling out of here to win”  I always wanted to leave and never did.  I used to see that road stretching out in front of me like a promise.  Well, I guess I finally did leave.

Good Thing – Fine Young Cannibals

Kevin always changes his voice mail to music to reflect what was/is going on in his life.  So things fell apart between us and Good Thing started showing up on his tape. I was his good thing.  Lord, that man could dance. He had this incredible body.  Life is all connected ’cause I took him to a party at Gary’s, didn’t tell him Gary was gay.  The man spent the party in a corner with guys saying “ooh, who brought Nick Nolte?”  Both of us can barely walk.  He would never ever  come for Thanksgiving even when we were together.  I was his good thing and he has always been mine.

We just disagree – Dave Mason

“There’s only you and me and we just disagree”.  My college love.  I used to play this for him.  I believe I bought the Boz Scaggs single, “It’s Over”.  What a mean bitch I was.  We are still friends.

Brown sugar  – Rolling Stones

Terry Toni and I used to dance to this at frat parties, smells of weed, alcohol, hormones  We would jump up like cheerleaders at the end, “yeah, yeah, yeah”  the three of us.   I see Toni on FB and she looks the same.  I am close but changed.  Terry and I can’t dance anymore.  Terry used to shimmy and shimmer.

Trucking – the Dead

When I first heard it, I didn’t know it was the Dead.  It was a band at Hopkins called Ocean Rose.  This song is inextricably connected in my brain with the smell of magnolia and beer. I have always maintained that beer spilled on the earth smells like flowers.  I guess it dates back to that time.  I remember the innocence and along with the scent of flowers, the scent of possibilities.

America  – Simon and Garfunkel

“I am empty and aching and I don’t know why” We all listened to Simon and Garfunkel.  Our junior high school music teacher went to high school with them.  America is different.  We used it as a processional for Social Action Youth at the temple.  A few years ago, I heard it again. The words resonate.  Cars on the New Jersey Turnpike and blasting Bruce Springsteen and the speed limit.

LA Woman – The Doors

I was newly thirty and so in love.  Kevin and I went to LA.  We landed and were driving at sunset.  This was playing on the radio. The air was warm, soft and glowing.   I thought that this was what it was all about.  See previous Kevin comments.  Well, we are still friends but LA left us behind.

I’ve got a rock and roll heart – Eric Clapton

Yes, I am bad.  I was having an affair with a married man.  He fancied that he looked like Sean Connery.  He wanted me more than I wanted him.  I was with Kevin, see above.  Yes, Kevin found out, was hurt and called his boss.  Roger wanted to leave his wife and was promising me the world.  What broke us up?  I believe in this song. I have a rock and roll heart and knew he didn’t.

Diamonds on the soles of her shoes – Paul Simon

Kevin used to tell the dog, well it’s Paul Simon, we must be at Tres’s again.  But this song, this song I associate mainly with someone else.  Kevin and I were not working out after years together.  I was so unhappy.  (See another blog for more on this)  My dad gave me money so I could take  a cab.  I was wearing patent leather flip flops with a rhinestone center.  This song for me is drunk and happy.  He was Irish.  I brought him home for Thanksgiving.  My mother said he was a transient.  He left me.  My father never said anything about the money.

Breakfast in Bed – Chrissy Hynde but originally Jamaican – Lorna Bennett Lorna Bennett

Ah, this is the beginning of my night life.   Kingston, Jamaica 16 years old and this played everywhere. I went to night clubs with my cousins, boy cousins and girl cousins. I danced.  I remember Epiphany, all black light with cocktail waitresses with wings and the scent of my cousin’s English Leather.   Certain lines influence your life, or at least mine.  This song, along with Faces “Stay with Me”  became my mantra – “Breakfast in bed, you don’t have to say you love me”.  Trying to understand why I felt that way at 16 before things in my life even started. “In the morning, don’t say you love me or I’ll only kick you out the door”.  Shape of things to come.  My beginnings

We didn’t get through the whole list.  It is the soundtrack of my life.  I am grateful for the music and for the insights it brings sometimes.  I miss dancing but my legs still move and my heart still sings.

The Colors Purple and Red

So, I was at a vendor fair today and took a short afternoon stroll to see what else was there. Ok, so maybe it was more of a gimp but not too bad.  I came back and sat down and my friend stared at my right hand.  Earlier, she had mentioned that another vendor was selling a bracelet just like mine.  Mine was from Corning,  glass irregularly shaped prism like glass in a wire wrap.  This complemented my black NMDJ jeans (last year I had to lie flat on the bed to attempt to zip.  This year, they are dropping off me literall) and a peacock print top.

Ah, can you tell clothing is my life?  I identify events in my life by what I wore when.  This started early. I was telling my husband this week that the first time I had a turkey leg I was ten and wearing a deep plum shantung silk  dress with jacket.  It had a crinoline, of course! A slim black velvet ribbon separating the top from the bottom. The top was white silk and there was the matching little jacket.  I couldn’t stand this dress.  I wanted one of those cheap pastel dresses that all the other little girls wore.  Now,  looking back I see the seeds of the woman I became and my taste.    I digress back to the day at hand.

No, my friend says your hand is purple.  I look down and lo and behold, it is flushed and purple.  Maybe dye came off my peacock top.  No,  it is your hand.  I was a little cold, nothing remarkable.  She grabs my left hand and it is totally normal colored.  My fingers and half way to my wrist are now deep purple even to me. She kneads my hand and the color returns.

Now, normally (uh, what exactly is that?) my hands turn bright red if I am having a hot flash.  These flashes are around a minute.  My hands and even my arms get deep red.  I was nowhere near a hot flash nor really that cold.  My feet were comfortable and they are always frozen.  I flash when I am upset.  I wasn’t upset.  The flashes are nothing.

Earlier, my right knee started to pulse,  visibly under my jeans.  Tonight, my left leg spasmed coming out of the tub.

So three odd things today, purple and red.

I want to wear decent shoes!

I have stared at my hands, looking for purple again and another betrayal.

 

Coming Back and Moving Forward

My milestone birthday is less than two months away! Changes in latitude, attitude and gratitude. I started to lose weight when I focused on being healthy instead of dieting. Yep, I slip, slip all the time but I get back on track. I think more. As I approach this last bit of my life, I don’t want the same same-old. It’s not only about food. It’s about being positive with change for the better. Why get mired in old behaviors?
I am back at the gym again. Met with the head of training who kept referring to my hip problems ( I have none, my not walking nothing to do with hips) and being older with an accident. OK I am older. He referenced someone”gee, she’s younger than me, maybe 22?” Not auspicious but yes, I am old enough to control the situation. I like the gym and will continue. Plus my health plan will pay me if I go regularly.
Work is out of balance as usual but I am taking steps to change. I spoke to the top guy and followed up. I am learning to market myself, better late than never. I refuse to fall victim to self sabotage again!
And I have made a date – September 19 for a makeover – cut, color, highlights, gloss, mani, pedi, make up. A whole day of torture with a budget for a small country or city. I think the salon will video. And I’ll share. It’s not so much coming back as moving forward

Tiny

Another morning with things starting out badly.  The train came in on a different track.  I sit so I get right on an escalator.  Different track. There is an elevator though, so I gimped over and there was a crowd including a young healthy woman with suitcases.  The other people were larger than me, most with canes.  I do travel with most of them on a regular basis.  There was no way I thought I could get on.  And then this woman that also takes the bus with me called out “C’mon, get on.  You are tiny.”  I never think of myself as tiny!  And I did fit in.

Back to tiny.  The only time I was called tiny was when I saw my college roommate after 35 years.  She gasped “You’re so tiny”  Now, mind you I was always considered the big one, with my roomies, my best friends.  But we used to swap dresses so I had to be the same size.

Here’s a picture of me about 11 years ago with my two best friends.

tiny

We had been friends for decades.  One I had grown up with.  Who is the smallest person in the picture?  Me.  I am the shortest and smallest.  Can  I tell you they always said I was the large one?  And I listened!  In fact, on that trip I bought a gorgeous pink suit which they told me I was too fat for.  My dad, who always teased me, used to call me Mrs. Hwiggins, when I wore something too tight.  I tried it on for him and he said I was gorgeous.  I wear it still and always get compliments. Oh and for various reasons, we are no longer friends.

When I met my husband, for the first time, I saw myself as small. I tease him that he is 67″.  Me, I am 5′ 5″.  I am the biggest woman he has been with and he is the shortest man I have been with.  You had to be at least 6′ to get to first base with me.   My ex-husband used to tell me he liked “Batik” women (his word) for petite and I wasn’t.  Well,  I did say ex.

What does this say about me?  Clearly, how I see myself is different than other see me.  My view might be distorted.  Low self-esteem.  Why did I listen to everyone else for so long?  What am I holding on to and believing about me?  I need to think.  So how am I perceived with the gimp?  Some people speak very loudly to me.  Overall, people are very kind.  Things to ponder

Starting Drugs

Well,  I received the call at 8 this morning that  I will be getting a shipment of Ampyra on Tuesday.  Two months free, too. What a difference a different insurance makes.  Here’s the thing my doctor isn’t covered but what she prescribes is.  So now, she costs hundreds.  Ah, well.  On my old insurance, the drugs would have been 13 – 1500 a month, not a year, a month.  Now it should be 60 a month.

I am scared. I actually fought it for ages.  The doctor said originally it would help me walk faster.  And I  didn’t need that.  In fact, first time insurance rejected me because I didn’t walk badly enough.  Then she said I could walk longer.  I was sold.  The stagger through three train stations was/is getting to me.  Now, stagger would be welcome.  It’s been cabs the last two weeks which is way too expensive.  And I hear myself turning into a cantankerous, querulous old woman.

I had hoped that the food would have kicked in.  I need to be fair, I have been cheating more and more so I do need to get seriously back on track.  I take baclofen every day and the dose has increased.  It does help but it seems that I need more and more and I don’t like that. I don’t want to become dependent on the drug and I know I will.  My husband says to think of it like the blood pressure pills he needs to take.

It’s only effective 60% of the time.  I don’t consider myself lucky that way so we’ll see.  I may be agitating over nothing.

And then as some of my favorite bloggers have mentioned, what about side effects and reactions?  Really scared.  My dad had high blood pressure always.  He finally was convinced to take meds.  He had a reaction  and he started curling up, literally.  We teased him for years.  I am his child, after all.

I know I need to do this.  I need to retain some functionality, no bilateral support in my future.  I need to continue to come out swinging.