Style and Grace and holding on to cry at home

I can’t tell you how many times I have said to myself hang on until you can get home and cry.  I was brought up not to cry in front of people, not my family particularly, but certainly the outside.  I have tried to live my life, especially when confronting obstacles and difficult situations, with style and grace.  It’s like a mantra for me.  Big girls don’t cry.  I have said “Style and Grace” every time I have been let go on a job.  I use it all the time, most recently in the situations I have been confronting on my job.  Okay lately,   I also take a bubble bath the night before potentially contentious meetings with Not Soap Radio – Bathing with Sharks.

I am getting tired of all of this.  I am hanging on.

So, I was not supposed to cry.  I didn’t receive my diploma on graduation day.  This was huge.  Additionally,  I never thought I would get married or have a wedding so this was going to be my day.  I was tapped on the shoulder and told I wasn’t graduating as we started the processional.  No one understood why I didn’t have my usual smile.  As we dispersed and I saw my parents, I started to cry.  My mother slapped me and covered my eyes with huge dark glasses.  I was out of work for ages and got a job.  I went in to have lunch with the owner.  He told me I didn’t have one; he had changed his mind.  Yes, here it comes another smack and dark glasses.  My husband was arrested and in jail right after my father died and I couldn’t get him out,  I sobbed on my sister-in-law till I wet her clothes.  Came home and started to sob.  My mother looked at me and said ” I thought I raised a grown up”.  And no, of course I didn’t cry when my parents died.  I gave both eulogies, no tears.  This comes at enormous cost. Yes,  I cry,  I gush rivers, just not publicly.  When I was diagnosed, no tears.  When the first physician’s assistant said “I think you have MS” I sobbed in the parking lot, not in front of her.  Maybe three times since 2008.

I am tired of holding on.

I had a meeting with the other ugly stepsister (work)  three weeks ago.  I thought I was being let go.  Stood outside and repeated Style and Grace, style and grace.  Summoned my grandmother’s spirit.  Walked into the room with my head held high and  SMILED.  Bathing with sharks.

So, this week:

I find out on my birthday that my health insurance company is closing.  Do you know how many years I had to wait to get covered for this drug?  It truly helps me walk longer and better.  If you saw me on the street you wouldn’t think so but it is better.  My new normal.  What happens with new insurance?  Scared.

Next,  I return to work and one of the ugly stepsisters wants a meeting with me to discuss what I do.  This is the woman that I reported to briefly.  I was like coyote ugly trying to chew my leg off when I was working with her.  So, once again we go through  “What do you do, how do you do it?” And  she is going to have someone who uses the word “wordsmith” to write something for me!  I can read the handwriting on the wall.

Husband has had a slip or several so I am back to being tense when I get home.  No real safe haven.

I had an appointment to discuss possible options yesterday.  Between the two meetings I literally couldn’t walk and was collapsing, bent over.

Today, I still felt still weak. Lots of training, walking, meetings.  Ran into guy who brought me back to this place. He’s been trying to save my job.  Calls me into a room so I thought I was finally getting the move and recognition.  NOT!!  My agent who handles my billing is going out of business.  No one else wants to take me on.  Essentially, this means I am out.  What do I do?  Go back to my desk and frigging smile!  Ok so I contact the trifecta- my doctor, lawyer, accountant.  In addition to my smile, I am known as a survivor.  Keep on murmuring style and grace.  My body is channeling all the stress and I lurch to the train.  They change the track and the escalator and elevator are broken.  Nearly fell going upstairs.  I do make it to the car.  My whole plan this afternoon was to get home like a pigeon and cry.  I started to cry close to home on the phone with my husband.  His response?  “Don’t be such a girl”.

No tears but my stress pattern is reverting to two I had years ago.  I used to have pre-fainting – pre hyposyncopia (sp).  I turn grey and my eyeballs roll  up in my head but I don’t faint.  Later years, I got palpitations.  Tonight both.  I know it’s holding the anger and the tears.  Now with this condition it goes through my body.

And tomorrow – style and grace.

September Warrior Check In

I recently took one of those Facebook  quizzes and both my first and middle names mean warrior princess

How do I feel today  –   Mixed.  Recently, there has been a reorganization at work and my medical excuse is not being honored.  So, on the positive side  I slept till nearly 7 a.m. this morning.  And I am not allowed to work from home at all.  Upside, I am getting back in touch with me and what makes me tick and joyous.  Other side:  I am limited.  I am planning a tea with friends next weekend and am dependent on my husband to get things.  I have a wonderful tea set.  It’s upstairs boxed because he doesn’t like it.  It’s too far in the eaves for me to pull it out so I won’t be able to use it.  This frustrates and hurts me.  He is angry and moody today which also brings me down.  I realize this must be hard for him but it is harder for me.  I fell yesterday morning and that is upsetting him.  I am working on something, late as usual, that is pictures of both of us.  I was short some of me as a child and went upstairs to get a few.  It hurts.  I have no children.  My brother and I are estranged.  These photos mean nothing to anyone but me.

What did you do for yourself today?

Well,  I am taking stepson to lunch.  I am going back upstairs to straighten up.  I am planning my tea.  Maybe, just maybe I’ll get to read

What did I eat today and how did it make me feel – I have been moving more and more to eating in a way that will help me.

Did I exercise?  What did I do?  How did it feel – Replaced Fitbit with Jawbone and trying to calibrate it.  Gym is a possibility.  I am looking for a new job so want to be/appear stronger.

For whom or what are you grateful?  What matters most in life?

I have been thinking a lot this month about the stepkids.  I am so blessed.  And I get along with their girlfriends/fiancee.  I asked fiancee to lunch and she thought I was mad at her but accepted anyway.  How cool is that?  It was to give her something for her wedding day.  After a certain point I never thought I would have children in my life.  I guess I do. It’s hard for me to believe they care for me. It’s a great gift.  And one of the reasons I have them is because of my friends.  I have friends who are amazing lifelines to me.  When I first became involved with the boys they were my guiding lights.  I am blessed!

Do I have a higher purpose or driving force in my life?   Make a mission statement –   I still have problems with this one.   I had a minister who once said I had a great capacity for joy.  Let’s go with that one for now.  I do an elves workshop for nieces every year and I tell them it’s about spreading joy.

How long have I been treated with conventional medicine Ampyra since April.  The Ampyra continues to work.

I met a man with a walkaid device and that looks appealing

The first time I had a symptom – June 2004 walking on the beach boardwalk.  Fell twice at home recently but it’s due to stress.

What symptoms are most troublesome  -still hung up on the ugly shoes!  And my hands seem to be weakening.  Same as last month.  Being dependent or limited is driving me wid.

Do I blame myself for things –  Yes, I am still blaming myself for not being aggressive against this. Still!  I let go of me and who I am and could be.  This month thinking about the self sabotage

How is stress level? Very bad.  Work is worse and it’s having a financial impact.  Like Scarlett O’Hara, I’ll think about that tomorrow.

What can I do tomorrow to make it better than today?   Continue to get back in touch with me and what gives me joy.  Organize the clutter

Until next month.

When It Rains….

I am having problems at work.  Change in the organization and I am no longer allowed to work at home, even with the doctor’s note.  I am getting it sorted but in the meantime it’s having a significant financial, mental and physical impact. I have a letter from my doctor saying I should not be in the office when is 85 or more.  Me, I thought 90.  The problem is I commute and am in the subways.  The first time must have been 6 years ago or so and I arrived home with 102.5 fever.  I was in Times Square and all of a sudden could barely walk.  Doctor didn’t know what came first.  Until  I get sorted out, I am continuing to go in.  I see where this is going – oh she can’t be here and she can’t do the work.  So I struggle and husband comes in and helps me home.  It is expensive.

Wednesday, when I left they were announcing delays and signal problems.  Normally,  I would have turned around and gone home and worked.  Wednesday would have been perfect as I had training scheduled with Ireland and they had wanted it early but in the office my best offer is 730 a.m.  The ride which is usually under an hour was almost two and a half.  I can’t sit or stand for long times.  Then just as we started to move,  I heard for real for the first time “Is there a doctor, medical personnel or law enforcement on the train.  If so, please come to car number in the front of the train.”  Now,  I get out in NYC, people are late plus it’s peak so a pushy, fast mob.  Exactly why I travel alternate hours.  I miss my pill which helps me walk.  No water and it can’t be broken apart.  Get on the bus and they announce a detour as the street is closed.  I can’t make this stuff up!

My husband can’t come in and help me because the trains aren’t working,  I have to leave early to avoid any mess.  I do make it through the stations in the high heat.  I arrive at Penn, with  4 minutes to spare for a train to where I need to go.  I have to tell you I love travelling with the construction workers.  They pick me up when I fall and super polite. I had to walk downstairs – numerous offers of help and no one pushed me on the train.  I get a seat!  Settle in like a bird in a nest.  Announcement:  We are experiencing equipment problems.  Really!  Luckily, it sorted out.  I was so grateful.

Cut to this morning – I have on a white toile dress.  Get my coffee, granola with milk, walk into my office/den and left toe goes.  Everything flies all over the place.  Upside nothing broke – not my body, not the cup, not the bowl.  And miraculously, not a drop on the white dress.  I know I fell due to the stress!

But I am now off for a few days!

August Warrior Check In

Life is still intense. I am thinking about the “default future”

How do I feel today –   Pretty crappy.  I was in a slightly manic phase the last few weeks.  I couldn’t do things fast enough.  I knew I had to crash and I have.  I put in a high stress over 50 hour workweek this week.  Bed late every night.  I made a presentation to our head on Friday.  Well, all I can say was it wasn’t negative.  It is hard to live with the continual uncertainty about the job.  There never seems to be enough time.  I am a Libra and feel seriously out of balance.  I need to clear the decks and can’t.  I have started a new venture except I haven’t.  I have the skills and the tools to rock it and little Miss Sabotage strikes again.   The MRI shows no change but I seem to be getting worse.  I  think  I am going to look into genome testing.

What did you do for yourself today?

I tried to sleep late.  I read the Sunday times,  yeah!  Straightened up a bit.  Sent in a job application,  sat outside in the gazebo. Did NOT go grocery shopping or any kind of shopping.

What did I eat today and how did it make me feel – Getting back to clean and it’s the right thing

Did I exercise? What did I do? How did it feel – No excuse not to go to the gym and I didn’t.  Miss Sabotage.  My fitbit has been wonky lately and I know that I had at least two days closer to 12,000 steps.  Ain’t drugs grand?  But zip didn’t record

For whom or what are you grateful? What matters most in life?   I am blessed with the most amazing friends, truly.  I have a husband who watches over me.  I continue to have possibilities.  And this year, beautiful flowers in the garden

Do I have a higher purpose or driving force in my life?   Make a mission statement –   Never give up?

How long have I been treated with conventional medicine Ampyra since April.  The Ampyra continues to work.  I am walking more with less fatigue.  Friday high stress day and took subway to Village during rush hour

The first time I had a symptom – June 2004 walking on the beach boardwalk.  Think it’s time to add last time -off balance, weak knees

What symptoms are most troublesome -still hung up on the ugly shoes!  And my hands seem to be weakening

Do I blame myself for things –  Yes, I am still blaming myself for not being aggressive against this. Still!  I let go of me and who I am and could be.  Same as last month

How is stress level? Skyrocketing with work issues

What can I do tomorrow to make it better than today?   Rest, take a step back.  Contemplate that default future and SMILE

Until next month.

July Warrior Check In

Back for July and late again.  Life has been a little intense lately.

How do I feel today –   Better than I have for the past few days, see previous blog.  I know I will never go back to the way we used to live.  Today is a holiday and the weather is uneven.  This works out as my plan for this weekend is/was to paint the office and catch up on my life.  I blog sometimes on another site and haven’t done so for ages. I am starting a new business and need to get cracking.  I really need to clear the decks.  It was great not getting up early today and not going anywhere.

What did you do for yourself today?     I slept, I am cooking, blogging and cleaning.  It feels peaceful.  I like spending time in my head.  I think I will read trashy novels.

What did I eat today and how did it make me feel – Still cheating with the good stuff.

Did I exercise? What did I do? How did it feel – Thinking about getting on the Wii and playing games, particularly balance ones.

For whom or what are you grateful? What matters most in life?   Grateful for friends. Grateful husband is back on track. Grateful that I can afford to take the time off and for the little things in life that are huge.

Do I have a higher purpose or driving force in my life?   Make a mission statement –   sounds too affected for me.  Working on the Mission statement, something along the lines of do no evil and never ever give up

How long have I been treated with conventional medicine Ampyra since April. I have walked more than I have in years.  The Ampyra continues to work.  I am walking more with less fatigue.  I even handled Grand Central and Penn pre-holiday!

The first time I had a symptom – June 2004 walking on the beach boardwalk.  Think it’s time to add last time -uh this week cramping and off balance

What symptoms are most troublesome – wearing ugly shoes and not being able to really walk.  Problem with the new spectral leg is my foot is too weak to get into the shoe

Do I blame myself for things –  Yes, I am still blaming myself for not being aggressive against this. Still!  I let go of me and who I am and could be.

How is stress level? Stress is still there but I have taken time off and am trying to keep things in perspective

What can I do tomorrow to make it better than today?   Go to the gym!  Continue to do what makes me happy on my day off.

Until next month.

Visiting the Doctor

Yes, sometimes I write about what’s going on condition-wise.  Tomorrow, I have a visit to the neurologist.  I haven’t been since July.  She likes to see me every three months.  I delayed for several reasons.  I thought I was  going to be an employee so I would have different insurance.  I was really hoping that by changing the way I eat, I would have positive change.  And frankly, I get tired and depressed hearing about the natural progression of the “disease”.  Last time, she told me I was more spiritual.  My unspoken response – “BS”

Well, tomorrow I am going back.  I am worse.  That’s another thing I don’t like, her denial that I am getting worse. It’s just natural.  One of the things we have been discussing is medication.  She has prescribed Ampyra for me but my former insurance didn’t cover it.  It costs $1300 – 1800 a month.  Now, I can get it for $60.  It works in 60% of the people.  I should be able to walk longer and faster.  I am terrified of drugs.  Also,  she can now prescribe meds that work on relapsing.  However, I have seen for some reason going that route only works for men.

In the meantime, I fell getting off subway on Thursday.  It’s getting harder and harder for me to commute.  My left leg is going.  On a positive note I should be able to get a better brace a.k.a. spectral leg for my right leg.  A new one may allow me to wear nicer shoes which will help my self – esteem.  Donna will know I hate, hate wearing shoes like the groundhog (inside reference) I don’t want to give up but struggling into work isn’t working for me. I like what I do but really don’t want to be there.  I took cabs last week except for the day I fell.  I can’t afford that.  Commutation already is hundreds a month.  I needed a cane to walk in my own tiny house this weekend.  Husband had a thought which may be valid.  I am a woman of a certain age and have been taking Estroven for years.  I forgot to buy some and have been without for a week.  Hot flashes and me don’t mix well.  Back on it so hopefully it will sort some of this out.  Also, my work stress has been through roof .  That’s a topic for another day.

Tomorrow we have a late appointment which means we see all the people who can’t even sit up being wheeled in, beyond depressing, the ghost of Christmas future.

Not optimistic.  Guess I can have a down day or so.

The Liebster Award Blog

liebster

Well,  better a little late than never.   I  do have to thank  Ms and Fabulous http://msandfabulous.com  for doing this for me.   I love reading her. It’s been really good for  me to think about some of these questions.

Why did you start your blog?

I started my blog because I have always had a journal/diary whatever.  As I’ve previously said in a way this is my Midas in the bulrushes moment.  It’s my way to vent and to process.  Ok, and to share.

What is your favorite color?

La vie en rose, of course.

What is your favorite dessert?

So many to love.  It  can  be seasonal.  Things I like Key Lime pie, Christmas pudding, trifle, cheesecake.  My current favorite mango coconut sorbet.

What are your top 3 favorite books?

Again, so many to choose and so many to love.  Well, Dickens at the top of the list.  So, I am thinking David Copperfield.   A Little Princess or The Secret Garden.  Hmmm.then….. Amy Tan is wonderful, Joanna Trollope, Ruth Rendell, Laura Lippmann, recent loves.  Maya Angelou –  I Know Why the Caged Bird Sings.  The Last Picture Show – Larry McMurtry.  Anything by Gail Godwin.  Barbara Pym – definitely shaped my consciousness.

What are your top 3 favorite movies?

Oh three so doesn’t work for me.  My favorites are transitory.  Movies I watch again and again….

Forrest Gump – I even paid to see it three times.  “The Object of My Affection,”  I keep on coming back to Easy Rider.  Did I love Peter Fonda?  “The Secret Life of Bees”,  “Jean de Fleurette and Manon”.  “Breaking Away”  – struggling to find yourself and recreate yourself.  Next week or next month,  maybe a different answer.

What is your favorite home-cooked meal/comfort food?

These are hard questions.  Eggplant parmigiana.  Stuffed flounder.  Solid Cadbury chocolate is comfort.

If you could speak another language, which one would it be?

Uh but I do.  I love French.  I wanted to take Latin and my parents put down their feet and  I threw one of the few hissies of my life and ended up in French.  It changed my life.  I have a facility for language and do Italian, Spanish and German.  In high school, I wanted to do Farsi and Russian.  Japanese would be useful in my job now.  Language is like extra vocabulary.  I believe knowing only one language is limiting.  My father used to make sure I knew how to say “I am American.  I need an attorney” in any country I was traveling to.   And me, personally,  I wanted to be able to understand “Let’s kill that little girl over there”.  I have enjoyed the freedom speaking other languages has given me.

If you were a superhero, what would your super power be?

Super power.  It’s always a toss up between invisibility and flying.  Right now,  flying trumps all.  It would be glorious to feel free, soaring and weightless instead of the careful measured tread I have to take.  And to be carefree.  Peter Pan calls me and don’t tell me he wasn’t a super hero.  He must have been the first.

What is one piece of advice you would give someone just starting a blog?

The same advice that was given to me – take a course.  I learned a lot from Blogging 101.  The other piece – read other people’s blogs.  It helps.

Which song would you pick to be your personal theme song?

Ah, these questions with no clear answers.  I always thought the Rolling Stones “Satisfaction”  was my theme song, flawed for obvious reasons.  When I was a college, Don McLean’s “Everybody Loves Me Baby” really worked.  I was going through a bad time and Bruce Springsteen’s Badlands. “Thunder Road” obsessively and constantly.  “it’s a town full of losers and I am pulling out of here to win” (See Levittown (read childhood)  comment)  but it’s so much more.   Hangfire by the Stones saved my life somewhere in the 80’s. Billy Joel’s “Only the Good Die Young” is a consistent theme.  I am a Levittown girl.   Joni Mitchell’s Cactus Tree and/or Coyote the last few years.  Van Morrison reaches my soul – Caravan.  Lately,  I have been playing the Allman’s Melissa on my ipod and Jason Isbell’s Live Oak.   The soundtrack of my life.   Is there a theme to all this music,  maybe someone else will see it.

Which do you prefer: bare lips, chapstick/lip balm, lip gloss, or lipstick?

Lipstick.  Finally, a definitive answer.  But I can’t live without eyeliner!

Eleven Random Facts About Me:  (Jessica, this stuff is hard!)

My favorite place to be is on the beach, any beach.  I miss the ocean all the time.  This condition has stopped me from walking on the beach.

I like my chocolate  and liquor straight and unadulterated.  Read that – not in cake or ice cream.  No juice, no soda.  Maybe a little ice.

I used to fit a terrorist profile in Italy.  I was single and travelled all over, staying usually only a night or two, all over Europe.

I love to cook.  This was unusual for my family as on my maternal side, they had servants and ladies didn’t cook and on my paternal side, well, maybe it was cooking but it certainly wasn’t good.

I can’t stand wearing red, pink or coral nail polish.  Blues, purples, greens, silvers and golds for me.

I hate red roses. They symbolize death to me.

Being married and staying married is something I never thought I would or could do.

I have a dish fetish.  I don’t know how many sets I have now.  I moved out of my mother’s because I had seven sets under the bed and in the closet.

I am a secret workaholic.  I do it in bunny slippers.

I am terrified of being a little old lady with cats.

I have great faith.

I nominate:

OnBeauty https://onculturebeauty.wordpress.com

Deuce2treble3quinn4 https://deuce2treble3quinn4.wordpress.com/

EmmaLisa3 http://emmalisa3.com/

F you, MS https://fyoums.wordpress.com/

Kelzbelzphotography https://kelzbelzphotography.wordpress.com

MyBrainisMessingwithMyHead mybrainismessingwithmyhead.wordpress.com

My questions:

  1. Why blog?
  2. If you could be anywhere but here now, where would that be?
  1. Traditional Medicine or Alternative?
  2. Is make-up part of your armour?
  3. What genre do you like to read best?
  4. Last film you saw and why?
  1. Favorite holiday?
  1. What is your favorite place you have visited?
  1. Did you like high school (or equivalent)?
  1. What scares you most?
  1. What advice would you give to someone starting a blog?

Official Rules

If you have been nominated for The Liebster Award, AND YOU CHOOSE TO ACCEPT IT, write a blog post about the Liebster Award in which you:

  1. Thank the person that nominated you, and post a link to their blog on your blog.
  2. Display the award on your blog.
  1. Answer the 11 questions about yourself provided to you by the person who nominated you.
  1. Provide 11 random facts about yourself.
  2. Nominate 5-11 blogs that you feel deserve the award, who have less than 200 followers.
  3. Create a new list of questions for the bloggers to answer.
  4. List these rules in your post.
  1. Inform the bloggers that you nominated that they have been nominated for the Liebster award and provide a link for them to your post.

April Warrior Check In

Back for April:

How do I feel today – Perkier today than in a couple of weeks.  I have had a lot of stress, frustration and pressure around my work.  I think my husband is slipping.  He definitely did and now I have no trust.  And although today was the first day all week, I could walk freely,  I took a bad fall in the subway.  My husband was with me and he couldn’t stop it. People always bad mouth New Yorkers but a man helped my husband pick me up off the platform and people held the elevator for me and this was rush hour!  I walked more today than all week combined.  I thought I really hurt myself.  We will see.

What did you do for yourself today?

Well, I blogged,  had lunch with some friends.  I am not working tomorrow, resting, reading and doing fun things.

What did I eat today and how did it make me feel – Mixed, though mostly good.  Granola (homemade) for breakfast and snack,  orange,  uh two Lindt chocs,  sushi for dinner and half a slice of my husband’s pizza.  I feel it, gave me a headache

Did I exercise? What did I do? How did it feel – Still not going to the gym or Zumba.  Due to more falls back to square one with abs.  Have been on treadmill and Wii.  Need to find the original DVD because of the balance issues.

For whom or what are you grateful? What matters most in life?   Grateful that I didn’t seriously hurt myself in my fall.  Grateful for the kindness of strangers.  Friends and family, health are what matters most.

Do I have a higher purpose or driving force in my life?   Make a mission statement – Higher purpose still not defined.  Beginning to dream again.  Too heavy for me.

How long have I been treated with conventional medicine Not this month but I have appointment with doctor on Tuesday and am going to try for the Ampyra.  And yes,  I am going to do my best to eat right this month

The first time I had a symptom – June 2004 walking on the beach boardwalk

What symptoms are most troublesome – Getting really slow and bad at walking and not being able to get on and off the train.

Do I blame myself for things –  Yes, I am still blaming myself for not being aggressive against this.

How is stress level? It’s high.  Now I am really frightened about how things are going down.

What can I do tomorrow to make it better than today?   Start over.  It’s a new month. Rest and do art.  Eat right

Until next month.

Poster Children

I have a thing about poster “children”.  When I received my initial diagnosis, me being me, I said let me learn everything about it, I can.  I am notorious for doing my homework.  First thing, we reached out to the MS society.  My diagnosis, which I reject or maybe deny, is PPMS.    Actually, I reject but that’s another day.  So we receive their packet.   Talk about poster children.  The PPMS brochure has woman in a scooter and she talks about how wonderful it is now that she has her scooter.  F’ing excuse me?  Not only is this not what I want to hear, it’s a piss poor message as far as I am concerned.  So, how I am going to cope and fight with this disease is bop around on a scooter?  Really?  Not me, not yet, probably God’s willing not ever.  We start with surrender and acceptance?  Not working for me and I don’t think it should!  We scratch MS society off our list and decide to fly solo.

Next, just this month we receive the newsletter from the Institute that’s treating me.  Monitoring is actually a better description.  See inspiring story on page…  Flip to page.  Another woman saying she wept buckets when they told her to use a cane  but now it is sooo wonderful.  Well, I didn’t weep when we had that conversation. I argued and acquiesced.  I don’t cry as a rule in front of other people.  I work really hard at not crying about this.  When I do, it’s usually frustration and rage as oppose to fear.  I have to use a cane now most of the time in public and it is so not wonderful.  I understand I do need to be safe.

What kind of message is being sent?  Are we Victorian?  Am I supposed to lie back and think of England?  I get it about false hope.  But what about possibilities and determination?  They don’t seem to fit in this “traditional” setting.  Well, I worked for years in fashion and was always considered trendy so this is my take.  Screw these “poster children”,  my trend is not to go quietly into the night or anywhere, not to surrender and not to accept defeat.

Broken Canes, Mary Poppins and Peter Pan

Last Monday morning I started off to work.  It was the first time I think in weeks that I was going to work and in a skirt.  No clunky snow shoes.  I had on my regular granny nanny tie shoes.  I was feeling positive.  As I got on the escalator the handle of my cane felt weird.  Hmmm,  I didn’t realize it was jointed.  I use collapsible canes.  And until the last few months didn’t break it out until I was in the last leg of the way home at Penn, then tucked it away on the train so when I stepped out it was safe in my back pack.  That being said I also go with pretty.  Not for me those orthopedic metal looking horrors.   In fact, we argued with my Dad when he started using one for whatever reason, we got him an Irish walking stick.  My first one was black with multi colored butterfly.  This one was dark purple with flowers.    I get to the top of the escalator, stop to adjust backpack and the handle split apart and flew off.    Two men who are on my train picked up the pieces and handed them to me.  OK so I am missing the handle but I still have the stick part, just about the same height, no problem, right?  Wrong, wrong, wrong.  It devastated me to realize that I couldn’t walk in empty space without it.  When did this happen?  I stumbled and staggered to the bus.  Then I had to walk the block to the office.  I held onto a marble barrier.  Didn’t see my friend who sometimes crosses with me.  There is a security guard who watches out for me and he was coming into work and helped me up the steps and into the building.  The building is a city block so I had to prop myself up another 3/4 block to get to my floor and then walk half a block to my desk.  I was shattered.  Being nervous made it so much worse.  During the day at work I don’t use the cane unless I go to another floor.

I recovered a bit and came up with Plan B.  I did realize as soon as it broke that there was no way that I could walk and do my subway usual without it and was going to take a cab.  My stagger into work when I wasn’t fatigued, was horrible.  So I initially thought cab, not happening!

One of my friends volunteered to go down to Duane Reade and get me another cane.  No,  I have a pretty spring one at home. My friend, the receptionist, usually has a golf umbrella.  My thought, it’s the right height with a handle.  My other friend goes to get it.  I call husband who says are you crazy?  I’ll come in with spare cane.

He calls and tells the kids that he pictures me with the umbrella being lifted up and sailing over Grand Central, like Mary Poppins.  Kids haven’t stopped giggling.  And sometimes, he makes me feel like I am being dragged by Mary Poppins when he tries to make me walk faster and longer.  I am skimming above the sidewalk.

And me, I miss being Peter Pan.  Didn’t ya think you could fly like Peter when you were younger?  I did.  I can see and feel it in my mind.  And I want to be Peter again.  I want to be free and soar outside of my body again.  I will figure this out!