Zombies, Dreams and Other Bumps in the Road

Disclaimer:  Life isn’t always about the disease or the condition.  When this journey started, I said I would not be confined or defined.  Well,  I started to let that happen.  I am fighting my way out of it.  I really dislike fighting.  I don’t like conflict.

Fact about me:  I am an avid, voracious and catholic reader.  However,  I don’t really do the supernatural or horror. Mysteries?  Yes.  Literature – smiles.

Disclosure:  My area of concentration at college was the synchretization of African religious beliefs in the colonial world.  I know, I know what was I thinking.  It is seriously interesting to me .  And that means I studied obeah, santeria, macumba, voudon.  But so not into zombies and if you really look at voodoo that’s not what it’s really about.

About conflict:  Work has been in turmoil for awhile.   I discovered earlier this year that my group head does not believe I am qualified to be a trainer!  It’s my job and I have been doing it with this organization for 15 years   11 years ago this month the training department in North America was disbanded as it was considered an expense not an investment and I was let go.  I was hired as a corporate training manager for a major US retail chain.  6 months later, I was asked back to finish some work.  So I did both jobs.  When the retailer went into bankruptcy, they were thrilled and I started working more hours, lots and lots.  Even now I average over 40 (billable) hours a week, have trained literally hundreds of people and created numerous successful programs.  So d’uh?  When I came back simplistically because of the expense thing they couldn’t call me training.  There are also corporate cultural and political issues so I do not identify there as a trainer because I seriously love what I do and yes, it pays well.  Also,  I work in I.T.  And am not technical.  I am the translator.  For those of you of a certain age,  I am the Mikey likes it of the department – if I understand and can do it, anyone can!  She says I told her I wasn’t a trainer.  Uh,  I made a  comment on 2nd day she was here!  In fact, one year they called me BUST – business user services/ testing!  My immediate manager and my former manager are moving to the other side of the business.  I was told that they didn’t know who my supervisor was going to be or where I would be located.  Unsettling.  And you know stress goes right to my legs and it’s not good.

Ok stage has been set.

Sunday night I dreamt that this woman (group head)  was a zombie!  She was on the ground disabled.  I was there and someone had given me a HUGE cartoon-like Chinese cleaver.  In my real life I have problems literally killing flies.  So,  I am holding this cleaver and there are people standing around me telling me I need to cut her head off.  It’s easy, the cleaver is big enough, it will be a clean cut.  I hesitate but they tell me I need to and can.  I visualize a dressed chicken. At the last minute  I smash her face.  There’s blood all over her face, rivers of it.  Then she starts to get up and I wake up screaming.

In the real world, I don’t talk to her or interact with her.  And I don’t do blood.

Cut to next day,  I go in and get a note from my former manager, there is a training job open.  Oh, I am not an employee. I am freaking and bouncing off the walls.  Tell husband to be ready and get me.  I literally stumble in.

For now, all is good.  It may even work out.  And I am walking really well.  I have had some great meetings and interactions.  It will be alright.  I am beginning to feel like me, the old confident, creative me!

But what did that dream mean?  Why did I have it then?

June Warrior Check In

Back for June, a little late.

How do I feel today – Today was horrid.  It started out at 4:30 a.m. with a rejection for a job I had interviewed for.  It would have meant getting up later,  more balance and paid medical insurance.  Plus, the area would let my husband work in the same area.  I missed my bus by very little so was late for work.  I had to do a taping at work and enlisted the guy that used to sit behind me.  He’s great to sit with.  Putting it in mild polite terms, he is, at best, a pompous ass to work with.  So,  I have been working on this project for over a year.  One for which he is supposed to act as my admin and enter all the details in the project tool.  I have been told he is claiming credit for it.  I have literally taped this around 20 times.  Couldn’t get the PC to share today for some reason.  He figured it out and gave a great reading.  Then he tells me the script needs to be “wordsmithed”  (I HATE, HATE lingo) and we need professional, real writer.  Grrrr!  Uh, I am one?  It’s the issue I have been facing.  I am currently out of favor, the grass looks greener to them.  After all of that, the tape is lost somewhere on the server.  I had to bring in the laptop (theirs) to do this and it needed security patches installed which took forever and went in a loop.  My phone charger broke.  I thought it had broken in the phone.  My back is hurting me.  It never hurts.  Even with husband helping me I barely made it onto the train.  Some guy dropped his suitcase on my arm.

On the upside, this has all strengthened my resolve.  I will and can get stronger.  I will and can get another job.  It is possible.  I did 12,000 or so steps today.

What did you do for yourself today?

Well, I went to lunch with a friend.  It was peaceful.  I am following through on a promise I made to myself at the beginning of the year to have lunch out of the office.  I ate appropriately, too.

What did I eat today and how did it make me feel – I ate nicely but…. My husband bought me a dish of gelato (verboten) as I type this.  My choice is that if I am going to cheat it will be with good stuff

Did I exercise? What did I do? How did it feel – The steps are moving up.  I am also planning on continuing daily abs work and I have started a yoga challenge and despite back, did not wimp out and did it.  It makes me feel better but also I realize how out of shape I have become.

For whom or what are you grateful? What matters most in life?   Grateful for friends.  My friends were around me today like a swarm.  My husband has been supportive.  What matters most?  Family and friends still hold first place.  The chance and strength to move forward.

Do I have a higher purpose or driving force in my life?   Make a mission statement – Higher purpose still not defined.  Beginning to dream again.  Still working on it.  To never give up, give in and be the best I can be.

How long have I been treated with conventional medicine Ampyra since April. I have walked more than I have in years.

The first time I had a symptom – June 2004 walking on the beach boardwalk

What symptoms are most troublesome – being off balance and not walking well, wearing ugly shoes and consequently ugly clothes.  I have a new spectral leg a.k.a. brace but still my shoes don’t fit.

Do I blame myself for things –  Yes, I am still blaming myself for not being aggressive against this. Still!  And I think always.  It’s funny how we don’t take things seriously

How is stress level? It’s high.  Way, way high

What can I do tomorrow to make it better than today?   Continue to try and be strong, stronger.  Go to the gym!  Smile!  Eat consciously and well.

Until next month.

After Mammo

No suspense, it’s all fine!  I am relieved but have a lot to say.  I went Friday and they took two more views and an ultrasound.  By the time I reached the scan, I was resigned to it going badly as every time they pressed the wand or whatever, it hurt.  Of course it did, ninny.  Your breast had just been smashed and squashed.  Talk about dense!

So more on the mammo. It seemed every other woman was there for a second look.  It hit me that they used to do the two views originally.  Then you used to sit around and wait for the results.  I don’t know which way is worst.  I was thinking again this week, it’s all about the money.  Where I go you take everything on top off, put your things in a plastic bag and sit in a top that is almost impossible to close.  So, would it take that much more time to take your things off in the room?  It is so sad, all these tense women sitting around holding plastic bags like refuges from a lost store.

Ok, there’s more.

12 years ago,  I had a similar scare.  It was worse and my high school boyfriend drove me to the biopsy December 23rd.  I was flashing unhappy memories.

Friday,  I had a friend to lunch.  My thinking was whether the results were good or bad, it would be good to be with a friend.  My husband was going over his sister’s to supervise a construction project.  So, we are sitting around having a nice time.  I have a lovely bottle of wine on the table.  We are also drinking steeped tea.  A very girly lunch, pink china, crystal. Friend says who is coming over.  I live on an odd block with only two other houses.  It’s out of the way.  We never get trick or treaters.   It’s husband’s probation officer!  I tell them where he is, ask if they want to come in which in retrospect may not be the best idea with wine on the table.  We are not supposed to have alcohol in the house.  They don’t come in but I am now flashing back big time.

So, 12 years ago and I believe this is one of the seeds that let whatever is in my body out and running amok;  I received a call at work that my Dad wanted to go to the hospital.  This was 9:30 a.m. I left work immediately.  My father was dead before 11 a.m. I found out my mother was in 6 figure debt and had no handle whatsoever on reality.  I gave the eulogy.

A week later, my now husband was arrested at my mother’s house for non payment of child support.  This was bogus as his ex-wife knew there was a violation of probation outstanding.  She is not a bright bulb and the police had been coming to her house looking for him and terrifying her 13 year old.  He was jailed.  This started a new chapter in my life.  I am suburban, middle class.  This was f’ing terrifying. Visiting jail and going to court were experiences I never expected to have.  On my first visit, a woman said well, if her husband wasn’t available, she’d visit her Dad.  This was a completely different world for me and one I have been living in since.  And I fell as I am wont to do when upset.  At work, my manager who worked out of the UK wanted to write me out of work for the rest of the year.  She could have if I was in the UK. Our HR person who I always refer to as Topo Gigo because she bears an astonishing resemblance to the little mouse told me I could do it unpaid.  I was responsible for three households! Compromise:  I had to go for counseling.  The counselor figured out that when I was upset, I let my feet out literally from under me.  According to my neurologist,  I must have had the condition since then or earlier.  Two weeks later, I had the bad mammo with the lump.  I kept on insisting it was the fall.  They said not.  Guess what? After all the tests and worry, it was the fall.  All this pain and fear  came rushing back on Friday.  But on the positive side, I had and have some amazing friends who have stuck by me steadfastly through all of this.   I did survive and have continued to survive.  I hated flashing back.  But once again, I made it through with the help of a friend.  Life is full of possibilities.

May Warrior Check In

Back for MAY :

How do I feel today – Nice day.  Attended a tea.  I actually did a table.  I was all tizzed about it but think it went well.  However, mixed feelings.  This is my fourth one.  I walked in first time four years ago  in a dress, today with a cane and pants.  But I am walking better than I have due to the drug.

What did you do for yourself today?

See above.  I went to a tea, very girly.  My husband was wonderful and helped set up and breakdown.  There’s a jewelry boutique so I got to shop!  And then went to Odd Job afterwards for this and that.  I didn’t work.  It’s a real break.

What did I eat today and how did it make me feel – BAD.  It was tea!  I did do a smoothy before I went but scones, salmon tea sandwiches, chocolate.  Then Chinese food.  I have been seriously sliding and need to recommit to proper eating.  I need to max the opportunity the Ampyra has given me.

Did I exercise? What did I do? How did it feel – Still not going to the gym or Zumba. But I am walking more.  I will get to gym.  This was the least I have walked all week.

For whom or what are you grateful? What matters most in life?   Grateful for friends and the possibilities of new ones.  Grateful for the people I am meeting through the blog.  Ampyra.  New possibilities.

Do I have a higher purpose or driving force in my life?   Make a mission statement – Higher purpose still not defined.  Beginning to dream again.  Uh, maybe some sort of sharing

How long have I been treated with conventional medicine Ampyra,  two weeks.  And it is working.  I was able to walk longer and stronger.

The first time I had a symptom – June 2004 walking on the beach boardwalk

What symptoms are most troublesome – being off balance and not walking well, wearing ugly shoes and consequently ugly clothes

Do I blame myself for things –  Yes, I am still blaming myself for not being aggressive against this. Still!  And I think always.  It’s funny how we don’t take things seriously

How is stress level? It’s high.  Trying to tone it down.

What can I do tomorrow to make it better than today?   Start over.  It’s a new month. Have a different day.  And yes, I am thinking about things other than disease and death. I am thinking about art and new jobs and possibilities, flowers and spring.

Until next month.

Ampyra Plus

Well, I started the Ampyra a week ago.  I had fought against taking drugs for ages.  When I finally gave in,  my insurance wouldn’t pay for it.  New insurance pays.  And it’s reasonable.  So, I started it last Saturday.  Yes,   I was/am worried about side effects.  Uh, seizure is one?  Much trepidation.  So far, so good,  no side effects.  And I am walking better!  It’s amazing.  Thursday, I walked 11,000 steps and was not stumbling and half dead, that night or the next day!  I can’t believe it.  I am fearfully optimistic.  On the one hand, I have read the literature.  This is not a cure.  I can continue to deteriorate.  I do not want to think about this.  Here’s where I am going.  I am taking this as a second chance.  I can go back to Zumba.  I need to find my way back to the gym and build those muscles.

This morning,  I went for MRIs.  I have been getting them from a research study.  It was de-funded and the doctor pointed out that it had been two years and since my left side seemed to be having trouble….  This time the insurance is good.  I didn’t want to go.  What is the point?  I know things have changed.  There’s nothing they can do, so why?  Of course, I had to take the spectral leg off for the MRI and the tech wanted to wheel me into to the room in a wheelchair.  NOOOOO!  I stumbled and gimped on it.  Puhleez!

And I am on a roll,  yesterday I went to get a new spectral leg.  I was shown one that had two thin metal strips in the back but my ankle is too wobbly.  However, there is a graphite one with a thinner back and slimmer sole.  I may be able to wear  nicer shoes. I hate, hate looking disabled.  I am like a newscaster behind a desk – everything looks good until I stand and walk!  I am very vain and ugly shoes impact me.  And I don’t buy what some of my friends tell me about being older and not wearing heels.  Okay, I wouldn’t want to wear stilettos anyway but I see no reason why I can’t with practice and determination get back to kitten heels.   Let’s not even consider crutches or wheelchairs.

My goal is to go back to wearing spectral leg only to and from work and to ditch the cane.  Build those muscles.  So, I need to amp the clean eating.  I am on my way.

Visiting the Doctor

Yes, sometimes I write about what’s going on condition-wise.  Tomorrow, I have a visit to the neurologist.  I haven’t been since July.  She likes to see me every three months.  I delayed for several reasons.  I thought I was  going to be an employee so I would have different insurance.  I was really hoping that by changing the way I eat, I would have positive change.  And frankly, I get tired and depressed hearing about the natural progression of the “disease”.  Last time, she told me I was more spiritual.  My unspoken response – “BS”

Well, tomorrow I am going back.  I am worse.  That’s another thing I don’t like, her denial that I am getting worse. It’s just natural.  One of the things we have been discussing is medication.  She has prescribed Ampyra for me but my former insurance didn’t cover it.  It costs $1300 – 1800 a month.  Now, I can get it for $60.  It works in 60% of the people.  I should be able to walk longer and faster.  I am terrified of drugs.  Also,  she can now prescribe meds that work on relapsing.  However, I have seen for some reason going that route only works for men.

In the meantime, I fell getting off subway on Thursday.  It’s getting harder and harder for me to commute.  My left leg is going.  On a positive note I should be able to get a better brace a.k.a. spectral leg for my right leg.  A new one may allow me to wear nicer shoes which will help my self – esteem.  Donna will know I hate, hate wearing shoes like the groundhog (inside reference) I don’t want to give up but struggling into work isn’t working for me. I like what I do but really don’t want to be there.  I took cabs last week except for the day I fell.  I can’t afford that.  Commutation already is hundreds a month.  I needed a cane to walk in my own tiny house this weekend.  Husband had a thought which may be valid.  I am a woman of a certain age and have been taking Estroven for years.  I forgot to buy some and have been without for a week.  Hot flashes and me don’t mix well.  Back on it so hopefully it will sort some of this out.  Also, my work stress has been through roof .  That’s a topic for another day.

Tomorrow we have a late appointment which means we see all the people who can’t even sit up being wheeled in, beyond depressing, the ghost of Christmas future.

Not optimistic.  Guess I can have a down day or so.

April Warrior Check In

Back for April:

How do I feel today – Perkier today than in a couple of weeks.  I have had a lot of stress, frustration and pressure around my work.  I think my husband is slipping.  He definitely did and now I have no trust.  And although today was the first day all week, I could walk freely,  I took a bad fall in the subway.  My husband was with me and he couldn’t stop it. People always bad mouth New Yorkers but a man helped my husband pick me up off the platform and people held the elevator for me and this was rush hour!  I walked more today than all week combined.  I thought I really hurt myself.  We will see.

What did you do for yourself today?

Well, I blogged,  had lunch with some friends.  I am not working tomorrow, resting, reading and doing fun things.

What did I eat today and how did it make me feel – Mixed, though mostly good.  Granola (homemade) for breakfast and snack,  orange,  uh two Lindt chocs,  sushi for dinner and half a slice of my husband’s pizza.  I feel it, gave me a headache

Did I exercise? What did I do? How did it feel – Still not going to the gym or Zumba.  Due to more falls back to square one with abs.  Have been on treadmill and Wii.  Need to find the original DVD because of the balance issues.

For whom or what are you grateful? What matters most in life?   Grateful that I didn’t seriously hurt myself in my fall.  Grateful for the kindness of strangers.  Friends and family, health are what matters most.

Do I have a higher purpose or driving force in my life?   Make a mission statement – Higher purpose still not defined.  Beginning to dream again.  Too heavy for me.

How long have I been treated with conventional medicine Not this month but I have appointment with doctor on Tuesday and am going to try for the Ampyra.  And yes,  I am going to do my best to eat right this month

The first time I had a symptom – June 2004 walking on the beach boardwalk

What symptoms are most troublesome – Getting really slow and bad at walking and not being able to get on and off the train.

Do I blame myself for things –  Yes, I am still blaming myself for not being aggressive against this.

How is stress level? It’s high.  Now I am really frightened about how things are going down.

What can I do tomorrow to make it better than today?   Start over.  It’s a new month. Rest and do art.  Eat right

Until next month.

Poster Children

I have a thing about poster “children”.  When I received my initial diagnosis, me being me, I said let me learn everything about it, I can.  I am notorious for doing my homework.  First thing, we reached out to the MS society.  My diagnosis, which I reject or maybe deny, is PPMS.    Actually, I reject but that’s another day.  So we receive their packet.   Talk about poster children.  The PPMS brochure has woman in a scooter and she talks about how wonderful it is now that she has her scooter.  F’ing excuse me?  Not only is this not what I want to hear, it’s a piss poor message as far as I am concerned.  So, how I am going to cope and fight with this disease is bop around on a scooter?  Really?  Not me, not yet, probably God’s willing not ever.  We start with surrender and acceptance?  Not working for me and I don’t think it should!  We scratch MS society off our list and decide to fly solo.

Next, just this month we receive the newsletter from the Institute that’s treating me.  Monitoring is actually a better description.  See inspiring story on page…  Flip to page.  Another woman saying she wept buckets when they told her to use a cane  but now it is sooo wonderful.  Well, I didn’t weep when we had that conversation. I argued and acquiesced.  I don’t cry as a rule in front of other people.  I work really hard at not crying about this.  When I do, it’s usually frustration and rage as oppose to fear.  I have to use a cane now most of the time in public and it is so not wonderful.  I understand I do need to be safe.

What kind of message is being sent?  Are we Victorian?  Am I supposed to lie back and think of England?  I get it about false hope.  But what about possibilities and determination?  They don’t seem to fit in this “traditional” setting.  Well, I worked for years in fashion and was always considered trendy so this is my take.  Screw these “poster children”,  my trend is not to go quietly into the night or anywhere, not to surrender and not to accept defeat.

Mortality, Perspective and Balance

Mortality has been on my mind a lot.  It’s a milestone year for me and I am feeling it, particularly since my mobility is impaired and seems to be worsening.  I hope I have many years ahead of me, good years but you just don’t know.  I live fairly locally to where I grew up so I was reading the local obituaries to see whose parents had died.  And then people’s ages were getting too close to mine and I even knew some of them.  It started to drag me down so I stopped.

Last week I received a call that one of my exes had a massive heart attack and was in a medically induced coma and the prognosis was not good.  This was someone I had lived with for a few years.  When I left him, he said “But we were going to get married”  Nice of him to let me know.  He wasn’t the first.  I left someone else who then showed me a polaroid of the engagement ring he was paying off on for me.

Joebe passed away on Thursday night and I got the call Friday.  I really thought he was stubborn and cantankerous enough to come out of this.  He never regained consciousness.  This is who he was, he thought he was having a heart attack so he drove himself to the doctor.  Just what they tell you not to do.  My husband has been upset because all week, of course,  Joebe has been in my thoughts.  I have been reminiscing. He doesn’t mind the reminiscing.  They are not happy memories. He does not like that.   I cannot help it.  I am trying hard to remember some happy times.  He was controlling and emotionally abusive.  It is what it is and he was physically abusive just that one time.  I tried explaining to my husband that remembering the bad times is not bad.  I put on the card for the flowers “You changed my life” and he did.  I learned all kinds of things about myself.  I learned how much stronger I was than I thought.

It’s ironic, it’s March.  I met him in March, 21 or 22 years ago.  I never go out on St. Pat’s but a friend, Joe S asked me to go with him as a favor to some event or other.  Joe T called and asked me to hang out so I said next week.  Next week, I went to hang with Joe T and met Joebe.  My parents couldn’t stand him as he was much older than me.  I was living at home after my first marriage broke up and he would call and say “It’s Joe”  and they would say “Which one?”  Drove him insane.  He was jealous and insecure.  He did make me look at where I was jobwise.  I had fallen on really bad times when my first marriage had broken up and was answering phones.  I applied for another job like that and he told me if I kept on looking at the same jobs I would be in the same place.  I left him when I got the job I have now.  At the time I jumped my salary by 50%.  With bonuses the first year, I made more than he did.  We never really stopped talking and this truly irked him, a man of his age being bested by a little girl. He never thought I was very smart and I am.  I am one of the first women at an all boys school and he always said that I got in because I was a girl.  We went to a 25th anniversary of the admission of women and the former president said that admissions my year were blind.  It was incredibly liberating.  Joebe scoffed and said they lied.

He bought me a house.  One of the reasons he bought this particular house was the day we looked at it, three swans floated up.  It was on water and I am tresswann.

I am preparing to go to his funeral this afternoon with my husband.  My husband always maintains that Joebe was my husband.  I lived with him longer than I did my first husband and had more of a relationship with him.

I have kept on saying all week, this is weird.  This afternoon is going to be weird.  I was at the wedding of both of his children, the christening of two of his three grandchildren.  He was one of 5 brothers.  The family liked me.  I have not seen these people in years.  I am going to have to walk into this with a cane.  My husband says to leave the cane behind and he will hold me.  I am blessed.  Things work out the way they are supposed to work out.  I had a really close friend die when I was with Joebe.  He knew him.  He refused to come with me to the wake or funeral.  Walking in alone was one of the hardest things I had done up to that point  in my life.  See, what doesn’t kill you will make you stronger.  Today, I will not be alone.  I will be supported by love.

So, perspective too.  On Thursday, I received a call from my agent indicating that he had been told I am not getting a raise for this year.  Can I say livid is too mild a word?  Yes, I worked remotely for most of January and February but I put in mega hours.  I give heart and soul and do excellent work.  I am not just saying this.  And I am hurt by this.  I will address it when I get into the office this week.  But coming in conjunction with Joebe’s death, it’s time to take another look.  If they think I am doing a less than adequate job which is what a non raise indicates to me then I can and will cut back.  If I cut my hours, I cut my income.  What’s money at the end of the day as long as the bills are paid?  Working less hours will let me get home earlier and when I am home earlier and not putting in extra hours, I can do more “me” stuff.  How about the gym? How about art and writing?

I am a Libra and as odd as it sounds, I need to be in balance.  I have been out of balance.  This manifests itself in my health.  Oh, and a side note on stress, I left Joebe and started a new job all in the same month, not too crazy.  I am moving towards this milestone birthday with trepidation.  I am taking these two events as a sign to get back in balance.  Maybe regain my physical sense of balance. We truly do not know when our last day will be.  I don’t want the rest of whatever time I have to be filled with regrets or what ifs.   Carpe Diem.

March Warrior Check In

Back for March:

How do I feel today – Mixed blues.  Despite the fall and my face, we ran around a lot today.  First thing, we went to Trader Joe’s and Omaha Steaks.  No, no meat for me.  Husband’s youngest just got his first apartment and we filled their freezer.  Then on to the Chocolate Duck, again not for me, getting a class for a niece and Easter Egg supplies for the kids.  Then on to sister in laws to drop off things and pick up Girl Scout cookies.  Not for me.  I don’t eat them, ever.  Visit kids with food, flowers and pyrex for housewarming.   I gimped through everything very frustrating and depressing but I still get going.

What did you do for yourself today?

Well, I blogged and then I am going to make a wrapped bracelet.  And it was fun shopping.

What did I eat today and how did it make me feel – Sigh.  Not good.  I started the morning with coffee and a piece of Christmas pudding.  Toffee crunch after trader Joe’s.  A streusel apple spelt muffin.  Quinoa chips.  Dare I say, steamed pork buns for dinner?  But I have been really good all week, smoothies and salads

Did I exercise? What did I do? How did it feel – Still not going to the gym or Zumba.  Still housebound, still doing the stepper and recently added treadmill.  I am working my physical therapy back in.  Hurt in falls so I am back to square one with Abs.

For whom or what are you grateful? What matters most in life? Grateful as usual to be warm safe and dry.  Grateful that I didn’t seriously hurt myself in my fall.  Grateful for the kindness of strangers.  And my job.  And my stepsons are awesome.

Do I have a higher purpose or driving force in my life?   Make a mission statement – Higher purpose still not defined.  Beginning to dream again

How long have I been treated with conventional medicine Not this month but I think I need to go to the doctore.

The first time I had a symptom – June 2004 walking on the beach boardwalk

What symptoms are most troublesome – Duh, gradually losing my ability to walk and being dependent.  And the falling.

Do I blame myself for things –  Yes, I am still blaming myself for not being aggressive against this.

How is stress level? It’s high.  Now I am really frightened about how things are going down.

What can I do tomorrow to make it better than today?   Start over.  It’s a new month.  I still have new days.

Until next month.